@FaeryMae 

Last reply

FaeryMae

What should I expect?

Hi! I just got diagnosed exactly 20 days ago, and then a few days after was my 25th birthday where I had to break the news to my family. My neurologist was great for ordering tests and getting me diagnosed buuuttt not so much anymore. I just had my first infusion yesterday, another patient at the clinic (a SUPER nice older lady, thankgod for her) told me who she sees and what she gets done and about PML (? I think thats right). I basically realized i was diagnosed and then thrown into the deep end with no swimming lessons. I know already i need speech therapy for my dysphagia but like, what else should i ask about/what do i need? Like, where do i even start?? Sorry this is so long i just don't know what to do.
@messy100

Yeah it is like being thrown in the ocean. My doctor was also more attentive at first and then disappeared. If you were given a number for an MS nurse I would use it for specific questions. And asking general questions here can be helpful too.

2
@FaeryMae

@messy100 i wasnt 😬 like he didnt even remember us already going over the mri results It was LITERALLY "alright so you have ms"

1