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I’ve been an MS suspect for 15 years. It seems no one is listening at all. Ex: bowel/bladder incontenance. Feeling like my scalp is detached from my head and locks of hair dragging across my head. Falling because right leg drags, spinning in head neck spine and waist. Unable to make my right hand do...

Hi everyone, I’m currently in the diagnostic process, and I’m hoping to connect with others who might relate. I’ve had a long list of symptoms over the years that don’t seem to fit neatly under one umbrella, but MS has come up more than once. Some of my symptoms include: • A spinning, buzzing, or ...

Hi everyone, I’m getting my first Ocrevus infusion next week and feeling a bit nervous. Any tips for before, during, or after? Thanks a lot!:)

Hi, I’m a 35-year-old man from Cyprus living with MS. What drives me is the feeling of *freedom* — the kind where you choose your own path, even when life tries to box you in. I believe in living life on my own terms, staying true to who I am, and connecting with people who feel the same. I don’t ...

So MS has taken a lot from me… balance, energy, the ability to feel my toes most days you know, the usual. But plot twist: it also gave me the unexpected superpower of lasting forever in bed. 🦸‍♂️ It’s a blessing and a curse… mostly because My wife says it's like running a marathon she didn’t sign...

Since the mental health bandwagon rolled in, MS awareness has turned into complete and utter bullshit. It’s all the same empowering, resilient, mindset bullshit and actually damages MS awareness. There’s nothing empowering about dragging your leg like dead weight or wondering if you’ll make it to t...

Living with multiple sclerosis (MS) means constantly adapting — to symptoms, to uncertainty, and to treatments that don’t always work the way you hope they will. After starting Ocrevus (ocrelizumab) in June 2024, I’ve now decided to stop — just over a year later. It wasn’t an easy choice, but it fee...

I had a pounding headache for days, it got worse every day. At first I was afraid, I was petrified thinking it was my blood pressure but I checked it several times a day and it was fine. Headache got worse. Then I just said to myself, this is just another MS headache and it too shall pass… but it ...