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We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2023 Shift.ms

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Found 10586 results

@Sophiemini

Last reply

Sophiemini

Honest feedback on kesimpta

Hi, I am due to change from plegridy to kesimpta but wondered about others experience of this? Does it cause lots of colds and infections because of the lowered immune system effect of the drug? Thanks in advance, Sophie
  • Treatment
  • Plegridy
  • Work and play
  • Diagnosis
6

@Mzjamienicole85

Last reply

Mzjamienicole85

Just looking for advice/feedback

Hi I’m just looking for some advice/feedback about muscle spasms. I’m on tizanidine but it only seems to work for about half the day. Any advice is greatly appreciated!!
  • Spasticity
  • Work and play
  • Symptoms
  • Diagnosis
  • Treatment
1

@shiftms-guides

Edited

shiftms-guides

Navigating the feed | Shift.ms Tutorial 2/5

In this tutorial we will be introducing you to the Shift.ms feed and where to find our most useful MS content and features. https://youtu.be/ZUqlshwgLrU Check out our other tutorial videos 👇 ► Managing your profile, inbox, and notifications: https://bit.ly/shiftmsprofile ► Using the explore page:...
  • Research
  • Diagnosis
  • Treatment
  • Symptoms

@Keila

Last reply

Keila

Feedback

Hi everyone I'm a newbie...i don't know much as of yet but I want to get start on views from others and what works or don't. Right now I'm taking tizanidne for muscle spans and tensions around my head that cause numbness, or tingling around forehead, down side of left face also middke of face around...
  • Symptoms
  • Treatment
  • Copaxone
  • Pain
  • Diagnosis
  • Plegridy
  • Numbness
  • Betaferon
  • Extavia
  • Rebif
2

@zyildiz

Last reply

zyildiz

I use Avonex since 17th Dec 2020 need your feedback about St. Marys

Hi all I will have MRIS at St. Marys next month need advice about Charing Cross and St. Marys.. Which hospital you think is better at MS? Thank you
  • Treatment
  • Avonex
  • Work and play
  • Symptoms
1

@Ralee

Last reply

Ralee

Sign in feedback

The whole sign in process is crap. Entering your email to then wait for an email (which you then have exit the browser or sign in on a PC) for a link to then be asked to enter your email in again. Why is it so long winded!
  • Diagnosis
  • Which DMT
13

@cailindeas

Last reply

cailindeas

MS and breast feeding

Hi, I'm Mammy to two wonderful little men, the youngest being 5.5 months. I was due to go back on Gilenya sooner but as I'm sure is the case for so many, restart was delayed because of Covid. I'm due to go back on in over 2 weeks but can't get my little one to take a bottle. I've tried different ...
  • Healthy living
  • Symptoms
  • Fatigue
  • Treatment
  • Gilenya
  • Work and play
  • Family and children
  • Relationships
  • Coronavirus
2

@tonks137

Last reply

tonks137

App Idea for MS Patients - Need Feedback

Hey everyone, hope you’re doing well today! I’m a 25 year-old female living in San Francisco with RRMS (diagnosed when I was 23) I have an idea that could help people with MS. Before I invest a ton of time into it, I wanted to hear from you guys to see if this is worth pursuing. Here’s the link ...
  • Healthy living
  • Diet
  • Research
  • Symptoms
4

@mmhhpp

Last reply

mmhhpp

Feedback please help

Hi all i am looking for some feedback specially from anybody who is bedridden or unable to stand up from wheelchair . I have been degenerating continuously now i can no longer stand up from wheelchair and psychologically i torture myself everyday thinking I could do sth to avoid this that I am no l...
8

@sassygirl

Last reply

sassygirl

Tecfidera feedback

hi, I've been offered tecfidera as an option which seems to be a better option (relapse wise) but keen to hear feedback on other people's experience with it for side effects etc. I am fortunate that i haven't had many flares but i had one in june that lasted 4 weeks so i was advised to go on medicat...
  • Symptoms
  • Relapses
  • Treatment
  • Tecfidera
3

@GlassHalfFull247

Last reply

GlassHalfFull247

Need feed back on Suprapubic Catheter

11/10/17 I had a Suprapubic Catheter put in. The bladder spazums are intense!! Not only that I have the feeling of being stabbed with a knife in the vagina. My Urologist has not promised a light at the end of this very painful tunnel. I have not been told this is normal or abnormal. I'm worried. Thi...
  • Diagnosis
  • Disclosure
  • Symptoms
  • Bladder and bowel
2

@MonicaP95

Last reply

MonicaP95

Need feedback from any1 taking Ocrevus i

Going to be starting my 1st infusion of Ocrevus this coming Friday. . nd im kinda of nervous wanting to hear from any1 thats is taking it or maybe had only had one ful treatment . . ?
  • Treatment
  • Ocrevus
5

@healthymindandsoul

Last reply

healthymindandsoul

Anyone has feedback on stem cell thingi?

Hello, I have been reading in multiple places about the stem cell treatment for MS. Just wanted to know is any of you know have any personal experience with Stem Cell Treatment, effectiveness , costs or anything related. Please share :)
  • Treatment
2

@paula26

Last reply

paula26

Eeg feedback

Hi all slightly new to the group,is there anybody who heard about eeg feedback treatment? Usually offered for adhd patients but I was wondering if this could solve my concentraction problem or help a little ?
  • Treatment
  • Which DMT
2

@kimc

Last reply

kimc

Seeking feedback on Lemtrada

Hi I would love to hear from anyone currently undergoing Lemtrada Treatment, I am about to move forward with the treatment and would love all positive and negative feeback from others experiences.
  • Treatment
  • Lemtrada
  • Which DMT
  • Work and play
  • Positives of MS
7

@DianaDe2

Last reply

DianaDe2

Breast feeding w/ MS

I was diagnosed w/ MS when my baby was 6 weeks old. MY neuro allowed me breast feed my baby until she turned 4 months old, then I'm supposed to start Copaxone. The baby just turned 4 months old and the Copaxone is ready and waiting for me in the fridge... But I feel great and would like to continue ...
  • Diagnosis
  • Newly diagnosed
  • Healthy living
  • Diet
  • Symptoms
  • Mental health
  • Treatment
  • Copaxone
  • Work and play
  • Family and children
  • Money
  • Positives of MS
2

@cassandrams

Last reply

cassandrams

Your feedback needed!

Hi all, We'd like your feedback on an idea we've had for a fundraising event. We've put together our ideas in a form, and there are some questions to answer about the idea. It shouldn't take any longer than 10 minutes to complete. The survey will be up for a week, so we'll be bringing it down on ...
2

@cassandrams

Last reply

cassandrams

We want your feedback!

We want your thoughts on a fundraising campaign idea we've had. We'd love your thoughts on our ideas and also to hear any ideas you've got. It's very important to us that this campaign is community endorsed! I'm not going to post it all on here, as there's a lot to say. So, if you'd like to help us...
7

@gpeps

Last reply

gpeps

Your feedback please!

Hi all To try and improve Shift.ms, we are having an independent evaluation done to understand better how the site works and the impact it has had, or could have. After an initial scoping phase, the evaluators have produced a survey for members of Shift.ms. It would be a huge help to hear from as ...
20

@Ribbons

Last reply

Ribbons

Drug feedback??

This post sort of crosses over with some of the comments on @iang post 'Tysabri Pill'. I've been advised by the consultant and MS nurse to go on Tysabri. I'm getting the JCV test tomorrow. I'm feeling a bit of pressure from the consultant to get it but I think that's because it's deemed to be the...
  • Treatment
  • Tysabri
  • Research
  • Which DMT
  • Copaxone
  • Fun drugs
  • Symptoms
  • Mental health
  • Work and play
3
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