Hi, I am due to change from plegridy to kesimpta but wondered about others experience of this? Does it cause lots of colds and infections because of the lowered immune system effect of the drug?
Thanks in advance,
Sophie
Hi I’m just looking for some advice/feedback about muscle spasms. I’m on tizanidine but it only seems to work for about half the day. Any advice is greatly appreciated!!
In this tutorial we will be introducing you to the Shift.ms feed and where to find our most useful MS content and features. https://youtu.be/ZUqlshwgLrU
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► Managing your profile, inbox, and notifications: https://bit.ly/shiftmsprofile
► Using the explore page:...
Hi everyone I'm a newbie...i don't know much as of yet but I want to get start on views from others and what works or don't. Right now I'm taking tizanidne for muscle spans and tensions around my head that cause numbness, or tingling around forehead, down side of left face also middke of face around...
The whole sign in process is crap.
Entering your email to then wait for an email (which you then have exit the browser or sign in on a PC) for a link to then be asked to enter your email in again.
Why is it so long winded!
Hi,
I'm Mammy to two wonderful little men, the youngest being 5.5 months. I was due to go back on Gilenya sooner but as I'm sure is the case for so many, restart was delayed because of Covid.
I'm due to go back on in over 2 weeks but can't get my little one to take a bottle. I've tried different ...
Hey everyone, hope you’re doing well today!
I’m a 25 year-old female living in San Francisco with RRMS (diagnosed when I was 23)
I have an idea that could help people with MS. Before I invest a ton of time into it, I wanted to hear from you guys to see if this is worth pursuing.
Here’s the link ...
Hi all i am looking for some feedback specially from anybody who is bedridden or unable to stand up from wheelchair . I have been degenerating continuously now i can no longer stand up from wheelchair and psychologically i torture myself everyday thinking I could do sth to avoid this that I am no l...
hi,
I've been offered tecfidera as an option which seems to be a better option (relapse wise) but keen to hear feedback on other people's experience with it for side effects etc. I am fortunate that i haven't had many flares but i had one in june that lasted 4 weeks so i was advised to go on medicat...
11/10/17 I had a Suprapubic Catheter put in. The bladder spazums are intense!! Not only that I have the feeling of being stabbed with a knife in the vagina. My Urologist has not promised a light at the end of this very painful tunnel. I have not been told this is normal or abnormal. I'm worried. Thi...
Going to be starting my 1st infusion of Ocrevus this coming Friday. . nd im kinda of nervous wanting to hear from any1 thats is taking it or maybe had only had one ful treatment . . ?
Hello,
I have been reading in multiple places about the stem cell treatment for MS. Just wanted to know is any of you know have any personal experience with Stem Cell Treatment, effectiveness , costs or anything related.
Please share :)
Hi all slightly new to the group,is there anybody who heard about eeg feedback treatment? Usually offered for adhd patients but I was wondering if this could solve my concentraction problem or help a little ?
Hi I would love to hear from anyone currently undergoing Lemtrada Treatment, I am about to move forward with the treatment and would love all positive and negative feeback from others experiences.
I was diagnosed w/ MS when my baby was 6 weeks old. MY neuro allowed me breast feed my baby until she turned 4 months old, then I'm supposed to start Copaxone. The baby just turned 4 months old and the Copaxone is ready and waiting for me in the fridge... But I feel great and would like to continue ...
Hi all,
We'd like your feedback on an idea we've had for a fundraising event. We've put together our ideas in a form, and there are some questions to answer about the idea. It shouldn't take any longer than 10 minutes to complete.
The survey will be up for a week, so we'll be bringing it down on ...
We want your thoughts on a fundraising campaign idea we've had. We'd love your thoughts on our ideas and also to hear any ideas you've got. It's very important to us that this campaign is community endorsed!
I'm not going to post it all on here, as there's a lot to say. So, if you'd like to help us...
Hi all
To try and improve Shift.ms, we are having an independent evaluation done to understand better how the site works and the impact it has had, or could have. After an initial scoping phase, the evaluators have produced a survey for members of Shift.ms.
It would be a huge help to hear from as ...
This post sort of crosses over with some of the comments on @iang post 'Tysabri Pill'.
I've been advised by the consultant and MS nurse to go on Tysabri. I'm getting the JCV test tomorrow. I'm feeling a bit of pressure from the consultant to get it but I think that's because it's deemed to be the...