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Hi guys, I have my first infusion booked for next week ; ;(soooo nervous about it) but this week picked up this hideous cold / flu from my child , I can’t get out of bed eyes streaming nose running head banging. I’m guessing if I rest up I should be able to feel ok next week. My question is shoul...

2 nights ago I was sitting and watching something on my phone when all of the sudden my vision went crazy. It was like I was looking through a prism but still couldn't make out what I was seeing. I immediately closed my eyes not because it hurt but it was like my eyes were being forced shut. I freak...

Due my infusions in 3 weeks and I've been noticing this week that while exercising and head movement is making me a little nausea. Like, just twist my neck side to side ,I have to close my eyes . head up and down for 12 reps of dead lift requires a pause with a couple deep breaths before anything...

Hi all, I'm currently 25 weeks pregnant and looking for advice on how to avoid flare-ups post partum. Still awaiting diagnosis (although most recent neurologist seems on the ball, so hopefully more tests and diagnosis soon) so not currently on any medication, but 90% sure I've got MS. My last flare ...

When I was 11 yrs old I lost my vision completely in my left eye after 5 eye Dr finally found one that knew what was wrong. I have a rare eye disease that only happens to young women and 20% of them end up with MS. Well I was 1 of the lucky 20% I guess. (It's all God's plan) Not knowing the percenta...

Hi all ! I had an episode of optic neuritis 8 yrs ago,had an MRI done and there was some lesions. Ar the time me and my neurologist decided to wait and see what happens rather than starting any treatment. I wasnt happy with how all treatments work and rhe side effects scared me a lot. This year ho...

Hi everyone, I have rrms, I have had mri for years. I find myself this year highly anxious regarding going in the mri. So unfortunately I cancelled my mri in October, due to really bad anxiety regarding the head coil and mri. I have had numerous headaches mostly when I wake up in the morning. I say ...

So, a bit of a backstory on my situation.. I was diagnosed in November 2021 with RRMS. I received my diagnosis after having numbness and tingling in both arms and legs and suffering optic neuritis which pretty much completely took my vision in my left eye. Luckily I got my vision back and it’s just ...

I’m well and truly in the crap gap right now, with my next treatment in a couple weeks. Something rather new and exciting is happening though, as my facial nerves seem to be having a party!! Perhaps they are getting into the festive spirit 😂 I wonder whether anyone else has experienced a tingly fac...

Just had another mri awaiting results. Have chronic fatigue, forgetfulness, ringing in ears, feeling of being drunk on occasions and dizzy. Headaches pain behind the eyes. Have been on low dose naltrexone for 3 mths with positive results for pain management. Just started a course of 100mg modafinal ...