MS or not?
I need other opinions only I promise I won’t take your replies as a medical diagnosis….
I had an MRI a few weeks back that showed some lesions and what my DR said was CVS. He told me he suspected MS and ordered a spinal tap which said i had ogliconal bands present and another abnormal result.
My symptoms are trigiminal neuralgia, occipital neuralgia, unsteady gait, blurred vision, heat intolerance, pain behind my right eye, fogginess, left leg pain, urine incontinence.
I’ve had injections in my scalp for the headaches several times with no relief. I’m on several meds for this as well as well as Modafanil for SEVERE fatigue that has recently gotten worse.
Today I saw my Dr and he says oh sorry you don’t have MS however I am unsure what your symptoms are from and tried to brush them off as something else. I’m very disappointed and seeking a second opinion.
Am I wrong here? I’m starting to feel like I’m losing it…..
Maybe you should see a new neurologist. The first neurologist my Pc sent me to looked at my MRI said my lesions weren’t MS. I ask her what they were from, she said “ I don’t know, but it’s not MS” My mom and I got up and walked out, she said you can come back in six months, and I said I wouldn’t bring my dog to you. She was so rude and didn’t even examine me. My doctor said he was so sorry and he wouldn’t ever send anyone to her again, I got a good neuro and they are great, just saying that might be a good idea for you.
I never really believed my MS diagnosis (I truly thought all my MS type symptons were brought on by pregnancy-MS nurse confirmed she'd heard that before) but then I got TN (it's truly hell isn't it 😔) I realised I did 🥺