Looking for
something specific?

Always ready… always aware… always dominating. F**k m.s.

I was at work on Monday, which was a bad day with my legs, (nearly cried but stopped myself) and I tried to explain what MS actually was to a young guy in the warehouse. He wasn't aware that there were 3 stages to MS and how our immune system attacks the Mylin Sheath that surrounds the nerves. He wa...

Ever since my diagnosis, things just went down hill. I wake up in pain, I can’t walk, can’t work.And I’m alone. No family no friends and my m embarrassed to be seen n public self esteem gone. I’m trying to handle it but it gets harder every day.

In a world that spins a tad too fast, Where MS folks must break the cast, A funny poem to share the light, On how they live, both day and night. Awake at dawn with body guessing, “What today? A curse or blessing?” Coffee spills, a tremor’s greeting, Socks mismatched, but heart still bea...

Im kind of scares to go sleep at night as i know im alwaya tired ao inevitablg will. Then i wake up in the morning and check myself to see if ive relapsed, as all ive done is qake up in the morning then left eye optic neuritis and 2 months later riggr eye opric neuritis. 14+ yrs later eyes are worse...

Over the last few weeks, I’m having to fight to stay awake while I’m at work! I sleep 7-8 hours almost every night, so I’m not sure if this is fatigue? I’m worried one day I’ll face plant the desk

Just want to vent really as It’s all so new and I have no one to relate to! My story starts with Lhermitte’s sign out of the blue from the 1st September 2024, it was initially so intense and every time I looked down. I also noticed deteriorating vision at the same time which lead to a stronger gla...

For the last couple of weeks I have been waking up through the night randomly with some very strange symptoms. I have woken up to generally feeling really "offish" and although I have been led in bed in a dark room with my eyes closed. I seem to have been "seeing" flashes in my vision, even to the e...

Just read what I wrote in 2018. Since then, I've been prescribed Pramipexole, 1 x night. Now the only time I get RLS is when I forget to take it before I go to bed. So I keep some next to my bed to take if I wake up with Restless Legs. Takes an hour for my legs to stop jumping and I can sleep. So I ...