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We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@Clary 

Last reply

Clary

Awake

Just wondering if anyone else has struggled to sleep after half dose of Ocrevus? I am wide awake. Could it have been the steroid? Most people report tiredness after Ocrevus 🤷‍♀️. Any thoughts, much appreciated.
  • Ocrevus
  • Treatment
  • Symptoms
10

@LadyKay 

Last reply

LadyKay

Steroids keeping me awake

Hi, I'm new here & still trying to figure the website out so hope I've posted this correctly... Sorry if I haven't. This morning was day 4/5 of medrone to help treat a relapse & they're making me feel really rubbish :( does anyone know if I can skip the last day's dose? I think I needed the...
  • Symptoms
  • Steroids
  • Relapses
  • Treatment
69

@DavidJ 

Last reply

DavidJ

Even coffee doesn’t keep me awake, over the last year fatigue has been terrible, I’m probably only awake 12 hours a day.

First posted on the Shift.ms app
25

@Sarah_G_Bowley 

Last reply

Sarah_G_Bowley

Anyone still awake?

It’s 4:31 am in Australia here. Is anyone still awake? Where are you from^.^
15

@MarnieV 

Last reply

MarnieV

Does anyone have burning in their feet I do every night keeps me awake and makes standing and walking painful

First posted on the Shift.ms app
8

@helenp 

Last reply

helenp

Gremlin awakes!

Hi I am new to shift ms I've had ms for 33yrs. Blindness, numbness, altered sensation, pins and needles all the old favourites. Now SecPro M S oh joy! Bring it on I say I am better than you
  • Symptoms
  • Blurred vision
7

@Dasharae1234 

Last reply

Dasharae1234

Pure exhaustion- although using everything to stay awake-anyone else and any tips

First posted on the Shift.ms app
7

@highheeledfagin 

Last reply

highheeledfagin

Asleep more than I'm awake.

The change of season has sent my MS a bit nuts and I find myself either awake (but not really with it) for just a few hours a day or I'll hardly sleep at all and still end up not being really with it. I'm pretty sure it's not a depression thing as I'm feeling pretty fine at the moment and there are...
  • Symptoms
  • Fatigue
  • Mental health
5

@shiftms-films 

Last reply

shiftms-films

Awake | A short film investigating sleeplessness and MS

AWAKE' is a short film by Shift.ms that explores the interplay between Multiple Sclerosis, sleep and mental health. It is an experimental documentary film that unfolds over one night. Voices from real late-night phone calls are woven together to reflect on life and death from the unique perspective ...
  • Symptoms
  • Mental health
  • Going out
  • Work and play
5

@ScottEvans 

Last reply

ScottEvans

Awakening feeling strange

Today I had to take a short nap and were woken up by my daughter for a phone call I felt so strange hard to explain really my arms legs stiff and very very lethargic after waking started to feel a little better but still not really compas mentos if you understand what I mean.
  • Symptoms
  • Spasticity
  • Work and play
  • Family and children
3
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