#awake - Shift.ms

16 Mar 2022 22:20Last reply 17 Mar 2022 22:07

Awake

Just wondering if anyone else has struggled to sleep after half dose of Ocrevus? I am wide awake. Could it have been the steroid? Most people report tiredness after Ocrevus 🤷‍♀️. Any thoughts, much appreciated.

@Circle

9 Sep 2025 19:20Last reply 9 Sep 2025 20:11

Staying awake

Today I discovered a whole new level of fatigue where i just couldn’t stay awake! I can usually manage fatigue but this shocked me, is incredibly variable fatigue something?

First posted on the Shift.ms app

Deleted

@softsweater

24 Jul 2025 03:03

I have internal tremors and they're bad tonight but I have to take this pill that's going to keep me even more awake to go in for blood work I just wanted to say that cuz it sucks

First posted on the Shift.ms app

@gmag44

21 Jul 2025 22:16Last reply 22 Jul 2025 00:48

Awakenings

Who has seen the movie ‘Awakenings’ before? This is how I feel while on the Solumedrol infusions. It’s been about 3 days post-infusions and I feel SO sluggish just taking the oral taper down Methylprednisolone. This is rough. 🤦🏻

First posted on the Shift.ms app

@MarnieV

27 Apr 2025 07:32Last reply 27 Apr 2025 18:10

Does anyone have burning in their feet I do every night keeps me awake and makes standing and walking painful

First posted on the Shift.ms app

@DavidJ

21 Mar 2025 16:24Last reply 25 Mar 2025 01:50

Even coffee doesn’t keep me awake, over the last year fatigue has been terrible, I’m probably only awake 12 hours a day.

First posted on the Shift.ms app

@Dasharae1234

10 Jan 2025 19:12Last reply 11 Jan 2025 21:14

Pure exhaustion- although using everything to stay awake-anyone else and any tips

First posted on the Shift.ms app

@shiftms-films

25 Jan 2000 17:38Last reply 5 May 2024 19:53

Awake | A short film investigating sleeplessness and MS

AWAKE' is a short film by Shift.ms that explores the interplay between Multiple Sclerosis, sleep and mental health. It is an experimental documentary film that unfolds over one night. Voices from real late-night phone calls are woven together to reflect on life and death from the unique perspective ...

@dvtrv

31 Aug 2023 01:06Last reply 31 Aug 2023 01:13

Anyone awake and just want convo?

Now??

Manchester, United Kingdom

@Jkoiou

10 Oct 2022 14:49 Edited

Trouble falling asleep once awake...

Anyone else have trouble falling back asleep after waking up? Ie. Usually if I have had +4.5 hrs of sleep, my mind or body wakes up to use the bathroom. Then I find I cannot fall back asleep. For the most part I'm awake the rest of the day. Rarely, I'll occupy my mind for a couple of hours until I ...

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