Looking for
something specific?

Just wondering if anyone else has struggled to sleep after half dose of Ocrevus? I am wide awake. Could it have been the steroid? Most people report tiredness after Ocrevus 🤷‍♀️. Any thoughts, much appreciated.

AWAKE' is a short film by Shift.ms that explores the interplay between Multiple Sclerosis, sleep and mental health. It is an experimental documentary film that unfolds over one night. Voices from real late-night phone calls are woven together to reflect on life and death from the unique perspective ...

Anyone else have trouble falling back asleep after waking up? Ie. Usually if I have had +4.5 hrs of sleep, my mind or body wakes up to use the bathroom. Then I find I cannot fall back asleep. For the most part I'm awake the rest of the day. Rarely, I'll occupy my mind for a couple of hours until I ...

Hi, I'm new here & still trying to figure the website out so hope I've posted this correctly... Sorry if I haven't. This morning was day 4/5 of medrone to help treat a relapse & they're making me feel really rubbish :( does anyone know if I can skip the last day's dose? I think I needed the...

'AWAKE' 🛌💤😪 is a short film by Shift.ms that explores the interplay between #MultipleSclerosis, sleep and mental health. It is an experimental documentary film that unfolds over one night. Voices from real late-night phone calls are woven together to reflect on life and death from the unique pers...

Hi I am new to shift ms I've had ms for 33yrs. Blindness, numbness, altered sensation, pins and needles all the old favourites. Now SecPro M S oh joy! Bring it on I say I am better than you

https://www.youtube.com/watch?v=R1RpZtnUrsw&feature=youtu.be Inspired by conversations from right here in the Shift.ms community 💬 'AWAKE' is the latest film that explores the interplay between MS, sleep and mental health 🛌💤😪 THANK YOU so much to all those involved in the filming of AWAKE. A...

It’s 4:31 am in Australia here. Is anyone still awake? Where are you from^.^

This is only available to watch this weekend and then it wont be up any more. While its mostly about alzheimers, there is a lot thats useful for MS. I dont agree with everything in it, but much of it is actionable and useful. Consider watching a few episodes if you have some time. https://regai...

Greetings! I am new on this site and learning my way around. Has anyone else heard of a natural supplement called Brain Awake? I ran across it at The Vitamin Shoppe while I was looking for a natural pain killer my doc wanted me to try. It improves your memory, energy and helps you focus. It really ...

Today I had to take a short nap and were woken up by my daughter for a phone call I felt so strange hard to explain really my arms legs stiff and very very lethargic after waking started to feel a little better but still not really compas mentos if you understand what I mean.

The change of season has sent my MS a bit nuts and I find myself either awake (but not really with it) for just a few hours a day or I'll hardly sleep at all and still end up not being really with it. I'm pretty sure it's not a depression thing as I'm feeling pretty fine at the moment and there are...

The 1970s generation WE ARE A GENERATION THAT WILL NEVER COME BACK. A generation that walked to school and then walked back. A generation that did their homework alone to get out asap to play in the street. A generation that spent all their free time in the streets with their Friends. A generation...

Hi MSers, Hope you are well. In the UK MS is a disability by law. Such as certain cancers and HIV, if you didn't know we are protected by the Equality Act. I have relapsing-remitting multiple sclerosis and I am not in a wheel chair. However, I have difficulties walking but you won't really notic...

Hi 👋 I am Sarah. Nice to meet you all. Sorry in advance for my very long initial post. It is actually a letter that I spent a long time writing to send to my gp because I can’t explain myself properly by speaking. I understand if it’s too long for you to read, I’m just desperate to know what is...

I’m struggling. I was diagnosed 3 months ago and on Tysabri. I now have a cold and it’s wiped me out. It 4am, I’m exhausted and awake. I feel like I’m over-reacting to a common cold but it’s hit me hard. I’m due to have my injection next week and I’m worried they won’t give it to me. What do I do? T...

Hey everyone, had my first half dose #Ocrevus 3 days ago and I had some reactions during. Scratchy throat and widening throat (weirdly 😂), sneezing, watery eyes, runny nose. Nothing that wasn’t fixed by an extra dose of antihistamines. Thing is, I’m absolutely exhausted. Head feels really thick and...

Is there any that can help with this as it's my main problem would like to stay awake for more than 4hrs a day

I generally sleep for 8 hours, no more no less. I started tossing and turning more since my episode in April. I have also found that no matter what I feel like I could sleep all day. But last night I slept for 16 hours with my usual tossing and tuning due to pain. I sit here after only being awake a...

I wish I could just sleep through the night without taking something like zzzquil. When I was working out it was better but after my carwreck I can't hit the gym like before to burn off energy. Then I struggle through the day only to be wide awake in the middle of the night. What helps you?