#awake - Shift.ms

16 Mar 2022 22:20Last reply 17 Mar 2022 22:07

Awake

Just wondering if anyone else has struggled to sleep after half dose of Ocrevus? I am wide awake. Could it have been the steroid? Most people report tiredness after Ocrevus 🤷‍♀️. Any thoughts, much appreciated.

@MarnieV

27 Apr 2025 07:32Last reply 27 Apr 2025 18:10

Does anyone have burning in their feet I do every night keeps me awake and makes standing and walking painful

First posted on the Shift.ms app

@DavidJ

21 Mar 2025 16:24Last reply 25 Mar 2025 01:50

Even coffee doesn’t keep me awake, over the last year fatigue has been terrible, I’m probably only awake 12 hours a day.

First posted on the Shift.ms app

@Dasharae1234

10 Jan 2025 19:12Last reply 11 Jan 2025 21:14

Pure exhaustion- although using everything to stay awake-anyone else and any tips

First posted on the Shift.ms app

@shiftms-films

25 Jan 2000 17:38Last reply 5 May 2024 19:53

Awake | A short film investigating sleeplessness and MS

AWAKE' is a short film by Shift.ms that explores the interplay between Multiple Sclerosis, sleep and mental health. It is an experimental documentary film that unfolds over one night. Voices from real late-night phone calls are woven together to reflect on life and death from the unique perspective ...

@dvtrv

31 Aug 2023 01:06Last reply 31 Aug 2023 01:13

Anyone awake and just want convo?

Now??

Manchester, United Kingdom

@Jkoiou

10 Oct 2022 14:49 Edited

Trouble falling asleep once awake...

Anyone else have trouble falling back asleep after waking up? Ie. Usually if I have had +4.5 hrs of sleep, my mind or body wakes up to use the bathroom. Then I find I cannot fall back asleep. For the most part I'm awake the rest of the day. Rarely, I'll occupy my mind for a couple of hours until I ...

@LadyKay

16 Jul 2016 22:21Last reply 17 May 2022 07:40

Steroids keeping me awake

Hi, I'm new here & still trying to figure the website out so hope I've posted this correctly... Sorry if I haven't. This morning was day 4/5 of medrone to help treat a relapse & they're making me feel really rubbish :( does anyone know if I can skip the last day's dose? I think I needed the...

Awake | Shift.ms

Sleeplessness and insomnia are often part of life for people living with MS. This film uses telephone conversations with MSers to map what goes through their head while everyone else is sleeping.

@Shiftms

29 Oct 2020 09:57Last reply 30 Oct 2020 05:29

Awake | A film exploring the link between insomnia, mental health and MS

'AWAKE' 🛌💤😪 is a short film by Shift.ms that explores the interplay between #MultipleSclerosis, sleep and mental health. It is an experimental documentary film that unfolds over one night. Voices from real late-night phone calls are woven together to reflect on life and death from the unique pers...

@helenp

1 Mar 2020 17:00Last reply 4 Mar 2020 16:27

Gremlin awakes!

Hi I am new to shift ms I've had ms for 33yrs. Blindness, numbness, altered sensation, pins and needles all the old favourites. Now SecPro M S oh joy! Bring it on I say I am better than you

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Awake | Shift.ms