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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@Clary 

Last reply

Clary

Awake

Just wondering if anyone else has struggled to sleep after half dose of Ocrevus? I am wide awake. Could it have been the steroid? Most people report tiredness after Ocrevus 🤷‍♀️. Any thoughts, much appreciated.
  • Ocrevus
  • Treatment
  • Symptoms
10

@Circle 

Last reply

Circle

Staying awake

Today I discovered a whole new level of fatigue where i just couldn’t stay awake! I can usually manage fatigue but this shocked me, is incredibly variable fatigue something?
First posted on the Shift.ms app
1
Deleted

@softsweater 

softsweater

I have internal tremors and they're bad tonight but I have to take this pill that's going to keep me even more awake to go in for blood work I just wanted to say that cuz it sucks

First posted on the Shift.ms app

@gmag44 

Last reply

gmag44

Awakenings

Who has seen the movie ‘Awakenings’ before? This is how I feel while on the Solumedrol infusions. It’s been about 3 days post-infusions and I feel SO sluggish just taking the oral taper down Methylprednisolone. This is rough. 🤦🏻
First posted on the Shift.ms app
1

@MarnieV 

Last reply

MarnieV

Does anyone have burning in their feet I do every night keeps me awake and makes standing and walking painful

First posted on the Shift.ms app
8

@DavidJ 

Last reply

DavidJ

Even coffee doesn’t keep me awake, over the last year fatigue has been terrible, I’m probably only awake 12 hours a day.

First posted on the Shift.ms app
25

@Dasharae1234 

Last reply

Dasharae1234

Pure exhaustion- although using everything to stay awake-anyone else and any tips

First posted on the Shift.ms app
7

@shiftms-films 

Last reply

shiftms-films

Awake | A short film investigating sleeplessness and MS

AWAKE' is a short film by Shift.ms that explores the interplay between Multiple Sclerosis, sleep and mental health. It is an experimental documentary film that unfolds over one night. Voices from real late-night phone calls are woven together to reflect on life and death from the unique perspective ...
  • Symptoms
  • Mental health
  • Going out
  • Work and play
5

@dvtrv 

Last reply

dvtrv

Anyone awake and just want convo?

Now??
Manchester, United Kingdom
1

@Jkoiou 

Edited

Jkoiou

Trouble falling asleep once awake...

Anyone else have trouble falling back asleep after waking up? Ie. Usually if I have had +4.5 hrs of sleep, my mind or body wakes up to use the bathroom. Then I find I cannot fall back asleep. For the most part I'm awake the rest of the day. Rarely, I'll occupy my mind for a couple of hours until I ...
  • Symptoms
  • Balance
  • Relapses
  • Fatigue
  • Bladder and bowel
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