New Member!
Hello everyone!
I just happened across this while browsing through FB this morning and decided I'd give it a go!
I'm a 21 year old student from Britain currently studying Fashion & Textiles, I love to design and create clothing!
I am just over 2 & 1/2 years diagnosed, 21st Nov 2014 was when I was officially told. In the June I started getting pain in one of my eyes with movement; doctors, then hospital, then Optic Neuritis. Was told to leave it, it will go away on it's own. 3 weeks later I cannot see out of the other eye; doctors, then hospital, then MRI, then Optic Neuritis still. This time they prescribed my with Steroid tablets to take down the inflammation, this worked (still can't look into my extremes because it makes me go a little dizzy & need to wear glasses now). Bonus to steroid tablets tho was that my eczema all cleared up!
My diagnosis came as a horrific shock to me. I have had only the worst impression on MS through out my life. My Grandfather (God rest his soul!) lived with MS for over 30 years until he passed away from pneumonia in 2007 at the age of 71. I knew only knew him throughout his worst years with not only MS but dementia too, this did not leave me with the greatest view. I had a very rough first year just dealing with the diagnosis, but have settled down now.
I had 24 weeks of treatment with Avonex injections (epi-pen style) I managed to do 3 on my own, then I slipped slightly once & could no longer do it. I used to have them on Thursdays, so Fridays used to be bad days, I'd feel tired & weak all day. Then the weekend would be okay, I'd work my weekend job. Then Monday came and I'd start thinking about Thursday. It was stressing me out and made me one of the least tolerable people to live with. I stopped these and swapped over to the Tecfidera Capsules, I had originally put these off because I have HUGE trouble swallowing tablets. These tablets are much easier, they don't put any drain on me and I'm a lot more emotionally stable, been on them for over a year now with only the occasional flush. I rarely have trouble swallowing them now but have found them easier to swallow with a carbonated or sports bottled drink.
My daily problem with my MS is fatigue, being diagnosed at 19 was difficult, it made my whole view of my life change. I now have to be careful no to over do and tend to say no to a lot of outings. Some of my friends completely understand this, but I have lost a few friends over it. I get the feeling that I haven't really been able to enjoy being a young adult or University Student because of fatigue & management always hanging around. But I am happy where I am at atm, I have a few close friends who are happy to go at my pace and a partner who loves me for who I am.
This is just a little background on me to introduce myself!
Melissa! :D x
Hi @melissaisloved1995 and welcome. Don't you just love the Doctor's wait and see approach, otherwise known an "kill or cure"! :wink: Yes, MS can be an imposition, but it is one of the realities of life. You have to take what gets thrown at you. You seem to have accepted this now and have adopted a level-headed approach. Stay well.
Hiya @melissaisloved1995 welcome to the band of absolute warriors. The man above, is the oracle & has given us all at some point, help & thoughts were he can....Personally can only say, keep it real & give this MS a swift kick in the vitals....it can be done, many have done just that.....Red