#social - Shift.ms

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Social

Hi, I am unsure of how to put a post up or even if it is allowed. I was just wanting to know if there are any active social groups who meet up for a laugh and just talk about the stuff we have put up with having MS. I go to exercise classes provided by the charity MS Research and Relief Fund. MSRRF....

Gateshead, UK

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social

I’m going to be 29 soon, and i’m finding it really hard to go out in public or make friends and socialize. i used to be very social and always hanging out with people daily. I suffer from anxiety, depressions and more. any tips to motivate me to shake this?

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What do you do when you can't stand social media, but you want to make friends?

Bleh. I've never been very good at making friends and I feel like MS has only made it harder. Aside from speech issues making me self conscious about being understood, I'm tired of having to swim through all of the underlying meanings and manipulation that has become starting new relationships. For...

First posted on the Shift.ms app

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I found this on social media, unknown author. It was like the words were pulled directly from my mind, I’m sure I’m not alone. I hope our peace will come soon.

Sometimes I wonder what it feels like to live instead of just survive. To wake up and not already feel behind. To breathe without the pressure of yesterday. To exist without the constant fear of what might go wrong. I don’t want a perfect life. I just want a break from survival mode — a day where li...

First posted on the Shift.ms app

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This is my first post. I have all the signs and symptoms of MS. Just recently they have gotten worse and I have to adjust some activities to what I call"stay safe". I have read a lot of your post and it seems like we have the same problem, getting the official diagnosis. I make sure I walk out to the river dock every day. I go to the beach several times a week. I'm lucky because I was able to retire and live a simpler life. Proud to be a senior citizen living on social security. That's probably pushing it a little! I hope you can try to fight back when you can and not let the MS win.

First posted on the Shift.ms app

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Social security

How long did it take for social security to approve those who can no longer work? I haven’t been able to work for 2 years now and I have been declined for social security disability 2x already.

New York, United States

Since I have moved to Florida from Vermont, I have been learning a lot more about MS as it’s whole until I actually found a neurologist that was actually specializing in MS. I did not know that not only is it a nervous system problem, but it is also autoimmune and I did not know That extreme cold and extreme heat can actually make flareups worse and if it is hereditary, it can also make the MS come out quicker. I did not know that I did 13 years making snow at a ski resort in Vermont and then when I moved to Florida, I did Five years underground construction and I always wondered why I felt funny and triple digit heat, but it wasn’t heat stroke, and there were days where if it got below zero or into the negative temperatures, my body would tighten up intense up like I was getting squished by a bow constrictor. I went years until my primary care physician told me to go see a neurologist, and then he gave me the evaluation told me to take an MRI. They did not find anything in my spine, but my brain said a lot is what the neurologist said, and then he started poking and stab in the bottom of my feet with stuff and doing a tuning fork all over my body and when I told him I couldn’t feel it in certain spots and then in other spots, I could just slightly feel it or it just felt like a ant crawling on my leg or on the top of my foot. I’ve never seen anybody that evaluated me for anything get so concerned, looking on their face and then now he wants me to do a spinal tap, which I am doing August 8. I already know it’s not going to be like the movies or television shows where it’s gonna be excruciating painful off the back. It’s going to be the next day. I’m going to have to recuperate. I have several family members with MS as well so they are kind enough to give me peace of mind explaining to me how they felt after all the stuff they had to do and I am pretty much doing the same thing and my neurologist did put me on something. I can’t remember the name of it or pronounce it but my flareup weren’t so bad, but then my colitis started getting worse so he took me off it and now as long as I just stick to easy tasks, I’m not so bad but it hurts sometimes to move. I can relate to how my mom felt towards the end now, she said she was in so much pain, but because her mind was slipping back into a childish state of mind. She had good spirits about her. My dad just turned into a zombie and he said that he only focused on walls or focused on watching a television show because it was the only way he could control the pain. I meditate to help with my pain and I listen to the doctors and follow my prescription regiment, but there are still days where it feels like I got hit by a truck and I just stood up out of bed. The scary days are when I can’t get out of bed altogether. I do not know if anybody else has ever felt like this, but there are days where I wouldn’t wish this on my worst enemy and to get places of business to understand what you’re going through and to explain to them OK if you have me do these tasks then don’t expect me to come to work tomorrow because I won’t be able to move. I have been rejected so many times my wife just finally decided to fill out for disability and now between my attorneys and Social Security I have my doctors not only giving me tests and labs for their peace of mind but now I have them filling out papers and forms for my attorneys and Social Security and it’s been like that for almost 3 years now every time I think we’re getting close I have more papers in the mail for my doctors to fill out or my neurologist there are days where I just wanna give up but then I think about what it would do to my family and then I sit with my son and play video gamesuntil the feeling goes away, and I snapped back into my normal self

First posted on the Shift.ms app

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Socialise

Hi everybody. Great weather. Just had a cream tea with a few people and found it really hard to socialise. Do other people get the same thing?

, United Kingdom

First posted on the Shift.ms app

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Living off social security is impossible

I’m currently receiving a social security check and I’m blessed to be getting that but I need more income. Any advice or suggestions?

First posted on the Shift.ms app

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New to the Fourm. Was recently diagnosed with MS last September. I get to see a Neurologist in June. Dealing with Face numbness, blurred vision, muscle pain, vertigo, headaches and chronic fatigue as well. It's starting to interfere with my ability to walk. I work as a case worker for Family and Social Services so I often have a heavy work load but my MS is causing me to fall behind due to days I can't get out of bed. I could really use some support. I'm not very educated about MS but I'm learning. Any information and tips would be very helpful! TIA!!

First posted on the Shift.ms app