So. I’m newly diagnosed. My question that I can’t seem to find an answer to is this… what have you got to do to actually get on a DMD? Or I suppose, does anyone know what the neurologists have to actually do…? 

Since being discharged from hospital, I feel very much like - I’ve been given this diagnosis, but not told how to manage my condition or actually started on any treatment. 

Im so anxious to start a DMD. I live in perpetual fear of nerve damage and looming permanent damage. I keep being told by the NHS it takes months to get on a DMD. I just don’t understand why?! What is it they’re doing that is taking time or what are we waiting for? Other than something else horrifying to happen… 😞

I’ve tried asking the neurologists and MS nurse. The more I ask the more confused I become. The different answers I get. I sit around getting more worked up about it. Not knowing if my lack of comprehension is the brain fog/MS or just the genuinely contradictory information they seem to give me…. 

Someone help. I’m so frazzled at this point. 

#desperatefortreatment #wantmylifeback


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MS & the NHS - wtf…

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