Shift.ms

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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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7 Dec 2024 20:53Last reply 9 Dec 2024 20:37

Cold

Just whinging because I’m sure there are others who understand. I hate when it’s cold. My fatigue goes through the bloody roof and I end up napping more often than anything. I need to move to country where it stays relatively warm in the winter months 😂 I can’t wait till the weather gets warm b...

First posted on the Shift.ms app

16 Jan 2024 14:48Last reply 8 Aug 2024 13:44

Cold

Hiya quick question, are you in more pain when it’s colder out. I do it’s horrible 🥶😢

Hull, United Kingdom

8 Dec 2023 14:43Last reply 9 Dec 2023 10:05

Cold

Hey everyone, I’ve had a really bad MS week, my worst in a good while and whilst I know the ‘why’ isn’t important, it can help a bit. I just wondered if there’s any chance the cold could make my symptoms worse? My stability was all over the place and I had lots more tingling than usual, but today wh...

Nottingham, UK

@emmastanley123

30 Nov 2023 21:25Last reply 2 Dec 2023 09:27

COLD

Hi all. Any other people with MS really struggle with the cold?? Particularly at night, my muscles spasm and its very painful even when I'm in bed with 5 layers I just can't shift the cold to the bone feeling!! Advice welcome x

19 Jan 2023 23:19Last reply 20 Jan 2023 18:11

Cold

Hi guys how do people cope in the cold it is getting too now 😭

29 May 2022 09:05Last reply 8 Jun 2022 07:41

Cold

Hello hive mind, is feeling cold (even when others say its OK or hot) a thing with MS please?

@Alesia_Poilova_Madni

15 May 2019 07:51Last reply 21 May 2019 00:36

Cold

Hi. My hands are almost always cold...if bit colder outside or in rooms I am shaking like leaf haha. Who knows why?

29 Jul 2025 21:10

Since I have moved to Florida from Vermont, I have been learning a lot more about MS as it’s whole until I actually found a neurologist that was actually specializing in MS. I did not know that not only is it a nervous system problem, but it is also autoimmune and I did not know That extreme cold and extreme heat can actually make flareups worse and if it is hereditary, it can also make the MS come out quicker. I did not know that I did 13 years making snow at a ski resort in Vermont and then when I moved to Florida, I did Five years underground construction and I always wondered why I felt funny and triple digit heat, but it wasn’t heat stroke, and there were days where if it got below zero or into the negative temperatures, my body would tighten up intense up like I was getting squished by a bow constrictor. I went years until my primary care physician told me to go see a neurologist, and then he gave me the evaluation told me to take an MRI. They did not find anything in my spine, but my brain said a lot is what the neurologist said, and then he started poking and stab in the bottom of my feet with stuff and doing a tuning fork all over my body and when I told him I couldn’t feel it in certain spots and then in other spots, I could just slightly feel it or it just felt like a ant crawling on my leg or on the top of my foot. I’ve never seen anybody that evaluated me for anything get so concerned, looking on their face and then now he wants me to do a spinal tap, which I am doing August 8. I already know it’s not going to be like the movies or television shows where it’s gonna be excruciating painful off the back. It’s going to be the next day. I’m going to have to recuperate. I have several family members with MS as well so they are kind enough to give me peace of mind explaining to me how they felt after all the stuff they had to do and I am pretty much doing the same thing and my neurologist did put me on something. I can’t remember the name of it or pronounce it but my flareup weren’t so bad, but then my colitis started getting worse so he took me off it and now as long as I just stick to easy tasks, I’m not so bad but it hurts sometimes to move. I can relate to how my mom felt towards the end now, she said she was in so much pain, but because her mind was slipping back into a childish state of mind. She had good spirits about her. My dad just turned into a zombie and he said that he only focused on walls or focused on watching a television show because it was the only way he could control the pain. I meditate to help with my pain and I listen to the doctors and follow my prescription regiment, but there are still days where it feels like I got hit by a truck and I just stood up out of bed. The scary days are when I can’t get out of bed altogether. I do not know if anybody else has ever felt like this, but there are days where I wouldn’t wish this on my worst enemy and to get places of business to understand what you’re going through and to explain to them OK if you have me do these tasks then don’t expect me to come to work tomorrow because I won’t be able to move. I have been rejected so many times my wife just finally decided to fill out for disability and now between my attorneys and Social Security I have my doctors not only giving me tests and labs for their peace of mind but now I have them filling out papers and forms for my attorneys and Social Security and it’s been like that for almost 3 years now every time I think we’re getting close I have more papers in the mail for my doctors to fill out or my neurologist there are days where I just wanna give up but then I think about what it would do to my family and then I sit with my son and play video gamesuntil the feeling goes away, and I snapped back into my normal self

First posted on the Shift.ms app

6 Jul 2025 18:26Last reply 27 Jul 2025 17:20

My hands and fingers have a numbness like they are in icy cold water . Has anyone experienced this ? If so what do you do or take for it ?

First posted on the Shift.ms app

24 Jul 2025 18:44Last reply 25 Jul 2025 01:57

What do you do to help beat the heat? My symptoms go crazy in the heat. I keep cold packs in the cars that I can use as needed.

First posted on the Shift.ms app