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They didn’t catch a virus. They caught MS. It started with a tingle. Then came the mysterious fatigue no one took seriously. By 28 days in, society hadn’t collapsed but a concerning number of people were falling over for no reason, losing feeling in random limbs, and quietly Googling “why does my e...

Hi, I’ve been reading a few posts today as having what I call ‘one of my bad days!!’and I’ve noticed a few of you mention an annual MRI. I’ve been diagnosed 5years now and not had an mri for at least 4yrs. I have quite a few liaisons and get varied pains throughout my body as well as issues with my ...

I’ve found it can sometimes be hard to go to the toilet as the muscles don’t push or contract. Sadly yesterday I had to get my mum to call an ambulance when she arrived home from shopping, as I desperately needed to go, but was not able to despite my bowels being full and in pain. The ambulance cr...

Hi all - new to the app and grateful for the opportunity to ask this. The last few years I’ve struggled with pelvic pain that seems to be originating in and around my bladder. I get tested somewhat regularly for uti and only have one about 25% of the time I have pain. I do always have high leukoc...

Hi, I have been offered Sacral Neuromodulation to assist me with my bladder/bowel issues and am a little nervous about the whole thing. Has anyone else been offered this? If so, how have you found it? Has it helped? Have there been any issues along the way? Any help / advice that can be given is...

1. Burning or Uncomfortable Skin Sensations Medical Term: Dysesthesia Definition: Painful or uncomfortable abnormal sensations, such as burning, stinging, or crawling, triggered by a normally non-painful stimulus or occurring without any stimulus at all. Examples: 1. A burning sensation on the a...

OK I know this isn't the nicest topic but I think you guys will be the folks to ask. I've lived with bladder/bowel urgency for about 10 years but recently it's bowel urgency I'm really struggling with, I get so stressed when I'm out and worry that I might need to use the bathroom but won't be able t...

Feeling so low the last few days. Spoke to my ms nurse and am being referred to the bladder clinic and the bowel clinic too. Just started Pregabalin as gabapentin wasn't working. They've only given me 25mg twice daily to start and it's doing nothing. Think my mood swings are terrible and I feel bad ...