@Texigurl 

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Texigurl

NEW TO MS, Not to disease

Hello everyone. First I would like to thank whoever thought of this group because iin the two hours I have been reading posts and educating myself tonight I do feel a little better knowing Im not alone. I was Dx'ed with RA in 2003. First they said Psoriatic arthritis and Fibromyalgia-the usual cocktail, but my blood work finally showed a positive RA FACTOR, and I was on Biologic meds from 2004-2006-when the eye doctor found a swollen optical nerve in my right eye. Biologic meds can propel the MS symptoms so I was taken off all biologics for a year. After that year they put me back on them and changed a few, but last year all RA big gun meds were stopped. In January of 2016 I tried to go off my steroids-I weaned properly, but couldn't move a bone to get out of bed each day. A brain MRI (after a nasty fall) revealed White matter. My Rheumatologist said.....I think you have MS. She said it was common for autoimmune disease to coexist. Other symptoms have included: A totally numb left arms three weeks duration October 2015. Multiple falls, legs go out from under me. Overheating rapidly with an urgent need to urinate-must happen to me 10 times a day, worse in summer. Just to cook dinner I need a wet towel on the back of my neck. I drip in sweat Blurred and double vision. Recently stopped driving on highways and bridges-or any narrow road. I dont seem to be able to judge depth. Vertigo-especially driving. Felt like the highway was moving. Had to pull over driving three times. Finally just stopped doing it, now hubby does the driving. Bad vertigo while sitting in one position, the room starts moving. Get very nautious Severe headaches-I wake up with them. They debilitate me. My whole day is shot and Im in bed. Especially behind my eyes and back of the head. Numbness in my fingertips-I have it right now Burning sensation under my knee-that drove me crazy, thought I was being bitten by a bed bug lol (I DO NOT bed begs lol) Feeling like something is touching my legs when there is nothing there. UTI's Last one was hematuria-bleeding. Very painful I was attributing alot of this to the RA. No one in my family ever had MS on either side that I know of. Im very confused as to how I got here, but Im here nonetheless and I have to make the best of it. My Rheumatologist said the way to bea this disease was to keep moving, so I opened up a furniture painting business last March and its very successful so far, and I keep moving. Today I had three MRI's under anesthiesia (that Iron man mask freaked me out). Still a little groggy. Got results on two of the MRIs that NOW say multiple white matter LESIONS. That sounds like a progression to me since the last MRI just stated white matter but no lesions. Tomorrow I get to talk with my Neurologist. See what she thinks. I think based on my symptoms and research that I have RRMS. Im on long term low dose steroids for the RA so I think many of my symptoms could probably be worse or more frequent. Thankful they are not. If not be able to drive is the only limitation I will have from MS, I can deal with that. Dont wanna say Im really glad to be here, I dont think any of us are, but glad this group is here to help and that I found it.
@Stumbler

Hi @texigurl and welcome. You seem to have been through some struggles. Do you know there is one theory that MS may be caused by head trauma? Now, there's a thought. And yes, Rheumatoid Arthritis (RA) and Multiple Sclerosis do come from the same Auto-immune stable of conditions. It's not unusual to pass through Fibromyalgia and RA en route to an ultimate diagnosis of MS. You might want to have a read through of some of the MS Information Leaflets provided by the MS Trust, over here in the UK :- https://support.mstrust.org.uk/shop They can be quite useful in explaining some of our symptoms, and what treatments are available. You might want to see if you can address some of your symptoms directly. An optometrist may be able to help with your eyes. Vertigo may be caused by benign paroxysmal positional vertigo (BPPV), which should be discounted. UTIs can be caused by Retention, so a Urologist/continence advisor may be able to help. Like I say, you're more than welcome here. :)

@Texigurl

Thank you very much Stumbler. I did have head trauma. Fell in my home 4 years ago and hit my head on my granite counter top. Slipped on one of those mesh door curtains I was trying to assemble. I was diagnosed with an AVM by my Neuro which is another reason for the MRI's yesterday. I had two horrendous IMMEDIATE headaches that she thinks were brain bleeds from it. Apparently while I was asleep this morniing she called twice, so I am a little alarmed to say the least. Will know more when I speak to her. Thank you so much for the information and your response and welcome!