@Eigenhater 

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Eigenhater

Is there any hope for my future?

Hi guys, somewhat of an infrequent poster here. I believe I have posted here before about my tough time living in limbo without a diagnosis and then actually getting my diagnosis and struggling with university - so I won't go too much into that. The long story short with all of that is I had a rather nasty relapse that began in about March 2017 (shockingly still ongoing) and basically lost most of my control over my brain, legs, arms etc. I couldn't sit my second year exams at uni because of the state I was in and had to fight tooth and nail to be able to retake the year (faced some naughty discrimination from the university while that went on, actually). Now I'm back at university, things are looking even more bleak than they did before. I actually managed fairly decently during my first semester, but as the semester wore on everything got much, much harder to cope with. The whole time my MS was there, wrecking havoc with my body. Towards the end of last semester I got a Christmas Temp job working at a high street retail (department?) store on weekends and for the first time in years it was something that I actually genuinely enjoyed. The work was tiring, yes, but it also was completely stress-free and didn't require me to use my already failing brain to sit down and work at complicated problems (university). As of last week my contract expired, but they actually wanted to keep me on permanently. This was fantastic news, but given that I was struggling with university already I said that I couldn't continue, but thanked them very much for giving me the opportunity and told them I would be very interested in coming back the same time next year. Where I am at the moment with university - doing a maths degree and not being able to make sense of numbers on paper - has made turning down that job offer the biggest regret of my life (second to actually going to uni in the first place). It has reached the point where it has become so impossible for me at university that dropping out is becoming more and more inevitable, but is something that puts dread in my heart. I've already sunk two years of my life into university, including my granddad actually paying £18k out of his pocket to fund that, and now I'm in my third year (retaking second year) and have taken out a student tuition loan for this year as I imagined it was the safer route with my MS. If I end up dropping out then essentially I will have wasted 3 precious years of my life and will have got nothing for it. Not only that, after dropping out I will just be a guy with absolutely no qualifications and struggling to get a job. This would be hard enough without my MS, which causes me to have lots of issues with mobility every now and again and gives me horrible pains that make doing things a nightmare (for example right now my spine is on fire). So without this degree, that is basically impossible to complete, I am an unqualified disabled person for whom work is even more difficult to find because of my MS. So my question, after all this writing, is that has anyone been through a similar experience? At the moment I have slipped back into a nasty MS-fuelled bout of depression and haven't eaten anything for 5 days other than a banana and a few pieces of toast. At the moment I am completely paralysed by my fear of the future and the uncertainty of my life ahead. My mother is a single parent who very much struggles to pay the bills every month and is only getting by with the small amount of grant I get from the university. If I were to leave my course I would just be a burden on my mother who is already struggling and would just cause things to be worse. There isn't really a support network that my mother and I can rely on as no one in my family is particularly well off - my granddad was actually putting his life savings into my education which makes me feel even worse, so he's not loaded or anything. As an emotional wreck I would really appreciate any advice from anyone who knows if things get easier. Is there any chance of an unqualified disabled person being able to find his way in the real world or is life destined to be all doom and gloom. And on top of that, is this what life living with MS is like - just falling at one obstacle after another? I mean, I have only been recently diagnosed (July last year) but have been dealing with this for about 4 years, but everything seems to just be getting worse. Thank you guys from the bottom of my heart for being here, and also I really apologise for the essay I've ended up writing. I started typing and just couldn't stop, as this is stuff I need to get off my chest.
@Marcyg921

First of all I'm sorry to hear how much of a hard time you are going through, its never easy to balance this condition with MS but I do urge you to not give up. Yes it seems hard now but if Maths is something you love doing then you shouldn't let MS stop you from achieving your goals because I would hate for you to wake up one morning in 10 years and think 'What if'. Also you're still newly diagnosed, it takes time to come to terms with a lifelong condition like MS. I assume the University knows about your condition and if so they really should be taking measures to make sure you can complete your studies while making sure you can look after yourself. Overall just because you have MS doesn't mean you have to stop living your life. We all go through this stage thinking about what the future but that's because MS is so unpredictable and lifelong that you're scared for the future but trust me when I say this, IT DOES GET EASIER. Yes we all have good days and bad days but its important to not let the bad days get to us and to just try and continue living. Remember you only get one shot at life and life gives you obstacles, you need to try and find ways to overcome those obstacles so you can go on and live a fully and happy life.

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@Vixen

Hello @eigenhater. Is am so, so sorry for what you are going through, it would seem you’re in a huge crisis phase at the moment, so first things first. OK, so you didn’t choose to have MS, it chose to invade you and I am pretty sure your grandad would say you are worth any amount of investment. He never envisaged you would have MS, either. All your fears for the future are real and valid. But, you need to try and find a way to park them for now. Especially with your reduced brain capacity, you need to focus on one area at a time, which should be right now. I have been involved in education for almost twenty years, and I can tell you that Your university have a duty to support you through this time. is there any way you could get accreditation for 5ise two years? For example, there are options like Open University who could transfer your credits for you to finish a degree with them, I’m sure. You don’t need to give up on your dreams just because of this huge health blip you are going through. It will pass and get easier. You are dealing with so much right now; you have health issues and concerns, but you are equally so young to be bearing the burden of guilt for your grandad’s money and your mum’s circumstances. You sound like such a lovely young person who has already gone through a lifetime of stress and angst. Not eating is not going to be helping your MS at all! Or your thinking brain! Do you have a college counsellor you can access? Also, your temporary disability might entitle you to some help through asssitive technology of something via the SEN department. It’s tough, but in this life, you have to do the asking as it’s unlikely people are going to flood you with offers of help at University. You won’t see this now, but at some point in the future, you are going to look back on these dark days and realised that your strength of character has gotten you through this period of time. Have faith in yourself. Ask for help, and remember that it’s not in the Ini’s interest to see you fail at all. Please send me a friend request if you’d like any extra conversations or anything. I feel so strongly about education and, having MS myself (admittedly as an older person) I really do get what you’re going through as I was recently diagnosed myself x