Is it worth the fight?
It's funny how quickly my mind goes to "well it was fun while it lasted. Time to end things."
In general I'm a very positive person and people compliment me a lot for being so positive, you always hear wiser (usually old )people say "it could be worse", and between that and MS, I've gotten through a lot, but at some point even the strongest give up though. I used to say I'll fight until MS takes my mobility and then I'm just going to give up and end things before I become more of a burden to people.
Last week Thursday, I fell and injured my back and haven't been able to stand since. My family, who claim to care about me and promised to look after me no matter how bad my symptoms get, gives a shit about me barely checking to see if I need anything.
Is it worth fighting, knowing it'll get worse and they have already shown how much they care?
Hi @AdventureMan I am so sorry to read this but it might not get worse and you would expect family to stand by you. How are you coping short of being angry and disappointed but you still have your positives you mentioned at the start of this post. We are with you and hope you can get the care and support you need. It is always worth the fight I think. Stay strong 🙏💪
Even though the fight is hard, it is worth it. Your life is super precious, there is only one you. Families can be strange in hard times because they have the luxury to ignore the hard times unless you are asking specifically for what you need which seems too hard when you are feeling vulnerable and need them to 'know' and be proactive to your needs. To survive you need their support. Make a list of things that would help, pockets of the day you miss having company, someone to dust, someone to collect groceries, someone to maintain kitchen, someone to do specific things that will ease your mental and physical strain. Never forget, they will care but they might not know how to do it well. I have had to swallow a lot of pride to keep going when times are tough but it is worth it xxxxx PS hope that is helpful, not bossy, because I hate being told what to do, especially when feeling down xxxx