Shift.ms
Donate
Learn about MS
MS symptoms
MS symptomsA guide to MS symptomsWhat are the early signs of MS?Understanding visible and invisible symptoms of MSMS HugMS and optic neuritis
MS diagnosis
MS diagnosisBeing diagnosed with MSWhat is MS?Different types of MSIs MS hereditary?Late onset MS and treatment
MS treatment
MS treatmentGetting treatment for MSCoping with MS fatigueExercising with MSUnderstanding MS relapseHSCT treatment for MS
Living with MS
Living with MSAfter diagnosis: living with MSMultiple sclerosis and mental healthWorking with MSMS, sex and relationshipsA guide to MS benefits in the UK
  • Forum
  • Learn about MS
  • MS symptoms
  • MS diagnosis
  • MS treatment
  • Living with MS
  • Find MSers
  • Buddy Network
  • Films
  • MS Latest
  • Get Involved
  • Volunteer
  • Fundraise
  • Donate
  • About us
  • Contact us
  • House rules
  • Terms of use
  • Privacy policy
  • Cookie policy
Sign in

We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2026 Shift.ms

Looking for
something specific?

  • Picked for you
  • Browse topics
  • Find MSers

Topics

  • Diagnosis
  • Symptoms
  • Newly diagnosed
  • Healthy living
  • Research
  • Disclosure
  • MRI
  • Browse all
Sort 1565 results by
Recent activityNewest posts

@Niccole 

Last reply

Niccole

For the last 30 I have learned to deal with a large variety of MS symptoms/ side effects. The newest one is tremors (mostly in my arms).😒 I take medication which helps the internal felling, but doesn't eliminate the grand tremors in my arms. Has anyone else dealt with tremors? All thoughts are welcome. Thanks.😏

First posted on the Shift.ms app
2

@Janeylfc 

Last reply

Janeylfc

Starting Tyruko and worried about side effects

Hello hope everyone is doing ok. I'm starting my first Tyruko infusion on Tuesday. I wanted Tysabri but apparently the NHS has stopped it up in Leeds and gone for the cheaper alternative i've heard good and not good things about it mainly issues with the switch between Tysabri to Tyruko. Has anyone ...
First posted on the Shift.ms app
3

@Duvera 

Last reply

Duvera

Side effects of medication

I was on Kesimpta for about 9 months. It wasn’t working so my doctor switched me to Mavenclad a month ago. I am not sure if the things I’m experiencing are related to the medication or just my MS. I had some issues when I stopped the Kesimpta. My body was confused not having it. But now I feel the...
First posted on the Shift.ms app
39
Deleted

@Cynthialee7165 

Last reply

Cynthialee7165

Stay in touch with your doctor he told me you have to, and I did the G.I. stuff wasn’t the worst there’s medicine for the side effects flinching

First posted on the Shift.ms app
1

@junee 

Last reply

junee

Pregablin… side effects after last dose

Pregablin has been amazing for my pain & sensations but i needed to start feeling more present and awake so have tapered off as dr instructed. Had my last dose a 4 days ago but for past 2 days i feel like i’m gonna throw up all of the time. Anyone else come off it before experience this? Just tryin...
First posted on the Shift.ms app
4

@malek 

EditedLast reply

malek

How do you feel after tysabri infusion ? What side effects it can give?

First posted on the Shift.ms app
7

@victoriaxxoo 

Last reply

victoriaxxoo

Kesimpta side effects!

Hi All, it’s my first time here. I’ve had MS since 2001 and have been offered a DMT. I think Kesimpta may suit me best but I am terrified of possible side effects. I hate the unknown and whilst I think this medication could be beneficial, I’m just so frightened. Thanks for any advice you can share.
6

@JeanneH66 

EditedLast reply

JeanneH66

Hi, I'm fairly new to the community. I was diagnosed with MS in 2001. I've tried several "old school" treatments such as Copaxone, Betaseron and Rebif. I went off all meds around 2015 because I got tired of feeling the flu like symptoms. I suffered a pretty bad exacerbation in 2016 where I was hospitalized for 7 days while I completed steroid infusions. My MRI at that time showed new scars, one of which was on my cervical spine. The steroids did me well for several years. I didn't have any new symptoms until 2023. I've had several MRI's since, all of which show no new scars. My neurologist has refused to treat me with steroids because I don't have new scars. I told him I was open to infusion therapy and we decided on Rituximab. I will be starting my first infusion on Monday, July 20th. Does anyone have experience with this particular medication? If so, has it improved your symptoms and what can I expect as far as any side effects? Thank you in advance for any feedback.😊

First posted on the Shift.ms app
7

@pepperpot1 

Last reply

pepperpot1

Kesimpta and side effects

Does anyone take Kesimpta and has found that everytime it totally wipes you out for 24-48hrs. Taken 6 doses now and still get exhausted and in pain with cramps from it everytime. I couldn't even open my eyes for with the fatigue immediately after. Also seem to get a crap gap, is this a thing with K...
First posted on the Shift.ms app
23

@thomassivems 

Last reply

thomassivems

Side effects

Is there any fatigue medication with no side effects?
First posted on the Shift.ms app
1
PreviousNext page