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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@malek 

EditedLast reply

malek

How do you feel after tysabri infusion ? What side effects it can give?

First posted on the Shift.ms app
7

@Niccole 

Last reply

Niccole

For the last 30 I have learned to deal with a large variety of MS symptoms/ side effects. The newest one is tremors (mostly in my arms).😒 I take medication which helps the internal felling, but doesn't eliminate the grand tremors in my arms. Has anyone else dealt with tremors? All thoughts are welcome. Thanks.😏

First posted on the Shift.ms app
1

@victoriaxxoo 

Last reply

victoriaxxoo

Kesimpta side effects!

Hi All, it’s my first time here. I’ve had MS since 2001 and have been offered a DMT. I think Kesimpta may suit me best but I am terrified of possible side effects. I hate the unknown and whilst I think this medication could be beneficial, I’m just so frightened. Thanks for any advice you can share.
6

@JeanneH66 

EditedLast reply

JeanneH66

Hi, I'm fairly new to the community. I was diagnosed with MS in 2001. I've tried several "old school" treatments such as Copaxone, Betaseron and Rebif. I went off all meds around 2015 because I got tired of feeling the flu like symptoms. I suffered a pretty bad exacerbation in 2016 where I was hospitalized for 7 days while I completed steroid infusions. My MRI at that time showed new scars, one of which was on my cervical spine. The steroids did me well for several years. I didn't have any new symptoms until 2023. I've had several MRI's since, all of which show no new scars. My neurologist has refused to treat me with steroids because I don't have new scars. I told him I was open to infusion therapy and we decided on Rituximab. I will be starting my first infusion on Monday, July 20th. Does anyone have experience with this particular medication? If so, has it improved your symptoms and what can I expect as far as any side effects? Thank you in advance for any feedback.😊

First posted on the Shift.ms app
7

@pepperpot1 

Last reply

pepperpot1

Kesimpta and side effects

Does anyone take Kesimpta and has found that everytime it totally wipes you out for 24-48hrs. Taken 6 doses now and still get exhausted and in pain with cramps from it everytime. I couldn't even open my eyes for with the fatigue immediately after. Also seem to get a crap gap, is this a thing with K...
First posted on the Shift.ms app
23

@thomassivems 

Last reply

thomassivems

Side effects

Is there any fatigue medication with no side effects?
First posted on the Shift.ms app
1

@pittydad 

Last reply

pittydad

Looking for suggestions for MS meds with little side effects that are effective

First posted on the Shift.ms app
5

@kellihr 

Last reply

kellihr

My Dr. prescribed me gabapentin and modafinil. Does anyone have any experiences with these medications they would like to share about side effects or pros and cons. TIA.

First posted on the Shift.ms app
16

@Glamluvs5H8MS 

Last reply

Glamluvs5H8MS

Anybody else got Ocrevus and have side effects?

I got infused on Tuesday and as soon as they started the Ocrevus I felt it coming in my arm and it wasn’t the one with the IV! I did tell my nurse however she only made notes of it. Now it’s Sunday and the pain I felt came back, now my right arm from my shoulder to my pinky is sore and very painful....
First posted on the Shift.ms app
2

@jsal 

EditedLast reply

jsal

Kesimpta side effects

Hi all, I have been on Kesimpta for close to a year now, but I am starting to notice some odd yet minor changes/side effects in my body. I have no clue if they are Kesimpta related (the side effects list is huge) so I’m interested to hear if anyone else has had any odd effects that they are attribu...
First posted on the Shift.ms app
9
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