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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Recent activityNewest posts

@n_bushell 

17 Jun 2025 05:40Last reply 17 Jun 2025 06:04

n_bushell

Ocrevus side effects.......

Morning all I had my infusion yesterday, woke up this morning and my face is bright red and hot to touch, this happen to me after the last one in December too 🤔 has anyone else experienced this side effect?? The nurse has told ne to keep taking antihistamines, thinking of trying the subcut in Decem...
First posted on the Shift.ms app
2

@Biteme71 

11 Jun 2025 17:34Last reply 12 Jun 2025 03:38

Biteme71

Ramification of torticollis nonsense and what happens when you have side effects with botox . After my latest round of Botox that I have every 3 months to deal with the torticollis new nonsense I now am choking every time I try to swallow something or God forbid eat something. This is not the diet plan I was looking for 🤦 I called the MS center for some advice on swallowing or rather navigating the new nonsense and then cold a different neurologist to try to get a second opinion. Of course I can't be seen until freaking August. No I don't want to go to the emergency room it's not an emergency simply going to the emergency room cost more money than my God damn mortgage. Luckily if I eat small bites of tiny things I'm able to choke down some food and cream of wheat works but damn it not cool. On the other hand my husband made a really cool attachment to a scooter we have so that we can hook my Walker onto it so that when we go on vacation I can take the walker with me at the beach when we drive around. It's the little things I'm such a lucky woman to have such a fabulous husband 🤩 and yes attitude is everything do what you can how you can when you can and everything else can f*** off 🤣

First posted on the Shift.ms app
3

@Padthai1 

1 Jun 2025 12:02Last reply 1 Jun 2025 14:46

Padthai1

Sunday and I’m just watching music videos and getting sky high ! Now and again it helps all the side effects of my ms unnoticeable 💯

First posted on the Shift.ms app
6

@ChelseaannG 

21 May 2025 06:15Last reply 22 May 2025 03:06

ChelseaannG

I have been on Rituximab for 4 years but my provider is switching me to Ocrevus. Has anyone here taken both medications and if so will the side effects be similar? It usually takes me 3-5 days to start feeling "normal" again after my Rituximab infusion and I can feel it wearing off about a month before I have the next one.

First posted on the Shift.ms app
3

@nanny82 

9 May 2025 02:51Last reply 10 May 2025 14:16

nanny82

I'm suppose to start Mavenclad this weekend, what can I expect in terms of side effects, risk for infection and overall performance of this drug. I'm kinda faithfull/hopefully with a little sprinkle of fear of the unknown.

First posted on the Shift.ms app
3

@soaioli 

9 May 2025 19:31

soaioli

Kesimpta and side effects

Last week I had my third keismpta jab..since then I’ve been experiencing some gastrointestinal symptoms (mild cramping, loss of appetite, nausea), but overall well-being is fine. Did anyone experience something similar?
First posted on the Shift.ms app

@Hough1981 

4 May 2025 09:19Last reply 4 May 2025 18:52

Hough1981

Copaxone side effects

Morning all. I was using Copaxone for many years, but stopped around three years ago due to experiencing awful side effects. I used to inject myself in privacy when nobody was at home. One occasion I injected into my right thigh, then experienced what can only be described as a feeling that I was h...
First posted on the Shift.ms app
9

@Johnwayne 

1 May 2025 04:40Last reply 1 May 2025 13:32

Johnwayne

Hi Everyone... I have had 14 months of unusual undiagnosed symptoms such as neurological pain, falling down episodes, pre syncope, blurred vision, stroke like Sensations, can't walk a straight line ever, Etc my doctor prescribed me pregabalin 100 mg a day to start.. I was wondering if anybody out here has taken pre-gablin for MS and or epileptic seizures.. and I was wondering if it worked for them and if there's any side effects please touch base back with me if you have thank you so much

First posted on the Shift.ms app
9

@Muffie 

26 Apr 2025 23:40 EditedLast reply 27 Apr 2025 00:20

Muffie

Ocrevus new 10 minute subcutaneous infusion side effects

Ive had the new 10 minute super fast subcutaneous injection 16th April. Have you had any different side effects? Ive been extraordinarily tired. Just keep wanting to close my eyes and drift off [slept 36 hours 3 days after infusion] also had an upset stomach. This all started several days after the ...
1

@Lane0324 

26 Apr 2025 14:00Last reply 26 Apr 2025 20:59

Lane0324

Kesimpta side effects

I took my first dose of Kesimpta yesterday. A few hours later I was drowsy for the rest of the day and 9 hours after taking it I had flu like systems. When I take dose 2 next week I was going to take it before bed to sleep away the drowsiness but I don't want to wake up and deal with the flu like sy...
First posted on the Shift.ms app
9
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