Newly diagnosed
Hi all 👋 I've recently these last two weeks been having stabbing pains in the left side of my head. They last between 30 secs and a couple of minutes but I've noticed I'm having them more frequently like 10-15 a day. Not sure if its ms related or not? My hubby thinks its because im so tired all the time but i just Don't know? not on any medication for the ms as I was only diagnosed in june this year after suffering with vertigo for 13 weeks mri confirmed i had legions and I was diagnosed with ms and discharged from hospital. I had a lumbar puncture 4 weeks ago but it was abandoned after 6 attempts. Neurologist consultant noticed im weak on my left side but its not ms related apparently? They arent sure whats causing it. Hence why they said i should have a lumbar puncture done. Im waiting for another appointment this time done via x-ray. Vertigo has subsided as I now only have it if I stand for too long or walk far. But dr called me in for an ecg recently after having a huge infection in my lymph nodes and they've found I'm tachycardic. I'm so fed up everything seems to be going wrong and I'm having new illnesses all the time. I waited 3 months from being discharged from hospital to see neurology and when I did see the consultant wasn't really told anything about my ms. Just told that I need a full mri with contrast and a lumbar puncture and then seeing my consultant back again in January but I haven't been told any contact info for ms nurses my GP told me to contact them if I had a flare up but I honestly don't know what a flare up is as I'm newly diagnosed with no answers of yet about my ms or medication to help with my symptoms. Feeling very fed up. How long did everyone else wait to get answers or medication to help with symptoms?
Hi, for me it was about 18 months from my first symptom to getting diagnosed and starting on a treatment.
That kind of pain, don’t keep it for yourself,talk to the Ms specialist right away or go to emergency and explain and tell them it is Ms symptoms, they will give you medication for it.