#mom - Shift.ms

@Jessicaannlangg

17 Sep 2025 16:04Last reply 17 Sep 2025 18:31

Does anyone randomly just feel light headed for a moment but then it goes away?

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@Nalani

20 Aug 2025 06:50Last reply 21 Aug 2025 21:14

My 16 year old daughter was just diagnosed yesterday. Sad as her mom and angry. Guess it's normal.

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14

@Mike9

10 Aug 2025 11:18

The moment i forgot i had MS

https://youtu.be/Iu8spkA0xtc?si=wrH8FSU-n5h4HpVd

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@morbiddelusion

19 Jun 2025 06:34Last reply 9 Aug 2025 19:05

I'm so tired of feeling like I'm not good enough, worthless, alone. I'm afraid that I'll be alone for the rest of my life. Ik that if I'm alone when my mom passes that I won't be able to stop my suicidal ideation from taking over. I have borderline personality disorder and my worst fear is being alone not having anyone to help me walk through the pain that my mom passing will bring. This has been on my mind so much lately. I am honestly afraid of what will happen... I fight with my mental health the most. Besides the fatigue my depression, my borderline personality disorder and suicidal ideation is something I have always had a hard time with. Any feedback would be great.

Ocklawaha, United States

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@Jimmy369VT

29 Jul 2025 21:10

Since I have moved to Florida from Vermont, I have been learning a lot more about MS as it’s whole until I actually found a neurologist that was actually specializing in MS. I did not know that not only is it a nervous system problem, but it is also autoimmune and I did not know That extreme cold and extreme heat can actually make flareups worse and if it is hereditary, it can also make the MS come out quicker. I did not know that I did 13 years making snow at a ski resort in Vermont and then when I moved to Florida, I did Five years underground construction and I always wondered why I felt funny and triple digit heat, but it wasn’t heat stroke, and there were days where if it got below zero or into the negative temperatures, my body would tighten up intense up like I was getting squished by a bow constrictor. I went years until my primary care physician told me to go see a neurologist, and then he gave me the evaluation told me to take an MRI. They did not find anything in my spine, but my brain said a lot is what the neurologist said, and then he started poking and stab in the bottom of my feet with stuff and doing a tuning fork all over my body and when I told him I couldn’t feel it in certain spots and then in other spots, I could just slightly feel it or it just felt like a ant crawling on my leg or on the top of my foot. I’ve never seen anybody that evaluated me for anything get so concerned, looking on their face and then now he wants me to do a spinal tap, which I am doing August 8. I already know it’s not going to be like the movies or television shows where it’s gonna be excruciating painful off the back. It’s going to be the next day. I’m going to have to recuperate. I have several family members with MS as well so they are kind enough to give me peace of mind explaining to me how they felt after all the stuff they had to do and I am pretty much doing the same thing and my neurologist did put me on something. I can’t remember the name of it or pronounce it but my flareup weren’t so bad, but then my colitis started getting worse so he took me off it and now as long as I just stick to easy tasks, I’m not so bad but it hurts sometimes to move. I can relate to how my mom felt towards the end now, she said she was in so much pain, but because her mind was slipping back into a childish state of mind. She had good spirits about her. My dad just turned into a zombie and he said that he only focused on walls or focused on watching a television show because it was the only way he could control the pain. I meditate to help with my pain and I listen to the doctors and follow my prescription regiment, but there are still days where it feels like I got hit by a truck and I just stood up out of bed. The scary days are when I can’t get out of bed altogether. I do not know if anybody else has ever felt like this, but there are days where I wouldn’t wish this on my worst enemy and to get places of business to understand what you’re going through and to explain to them OK if you have me do these tasks then don’t expect me to come to work tomorrow because I won’t be able to move. I have been rejected so many times my wife just finally decided to fill out for disability and now between my attorneys and Social Security I have my doctors not only giving me tests and labs for their peace of mind but now I have them filling out papers and forms for my attorneys and Social Security and it’s been like that for almost 3 years now every time I think we’re getting close I have more papers in the mail for my doctors to fill out or my neurologist there are days where I just wanna give up but then I think about what it would do to my family and then I sit with my son and play video gamesuntil the feeling goes away, and I snapped back into my normal self

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@bigdill306

22 Jul 2025 21:08Last reply 24 Jul 2025 17:14

Hey everyone 👋 I’m Dylan, a 38-year-old guy living with MS out here in Saskatchewan. I run a legal weed dispensary (yes, I’m that guy), and I use dark humor, sarcasm, and a whole lot of cannabis to get through the weirdness that is life with MS.I figured it was time to find a space with people who get it the fatigue, the brain fog, the “oh cool, my leg’s just doing its own thing now” moments. I’m just here to connect, share some laughs (the darker the better), and not feel like I’m the only one in the snow belt dealing with this.If you're in or around Saskatchewanor even if you're not say hi. I don’t bite. Unless it's a bad MS day and my jaw spasms. (Kidding. Mostly.)Looking forward to getting to know some fellow weirdos on this ride

Saskatoon, Canada

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@Jimmy369VT

16 Jul 2025 15:55

Hello everybody, I am Jimmy. I just found this group and a little bit about me. Both biological parents were diagnosed with MS mom in her 20s. My dad and his 40s I have learned to watch for signs and symptoms, but I put them off thinking it can’t be happening to me it skips a generation And then I found out my dad‘s little sister was diagnosed and a cousin that is only two years older than me was diagnosed and I decided my wife being a nurse I might as well not put it off anymore because my body was getting worse. I have lost Feeling in both my feet. My limbs go numb for no reason I cannot stand or sit for long periods of time my bladder does not function the way it should. My balance isn’t the greatest anymore. I am pretty much going through all the same problems. My parents went through And I know I should listen to the neurologist and do everything but it just feels like he already knows he just wants to make sure that it isn’t a disease that mimics MS I know I just have to be patient and do everything but my body is in so much pain sometimes and I can’t sleep But then when I am able to walk around, we have sand spurs here in Florida. I can walk across my yard and my dog can feel them more than I can when they get stuck to the bottom of our feet and when I tell doctors and neurologist that both of my parents Suffered MS, their eyes light up like I’m assigning it to experiment and tell me that it is rare to hear that the neurologist I have studies MS and he says this was the first time he has ever heard of both biological parents having MS. He even showed me studies And it’s either a grandma or a grandpa Paw or a mom or a dad and then I was told I have a 12 to 15% more likely chance of having MS at first I was frustrated and then I was just depressed and then I realized if my parents could deal with it for so long and keep their positive attitude even though their bodies were breaking down And rejecting the things they wanted to do. I have decided that I will listen to the doctors but with everything else going on with me some of the medicines for it I can’t even take because of heart condition conditions or colitis. I appreciate being accepted to the group and I just wish there was something like this for my parents back in the 80s and 90s

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@JenNM

25 Jun 2025 03:16Last reply 25 Jun 2025 21:46

This is mostly relevant. I have found myself living alone because of this illness. A spider just crawled across my arm. I flicked him. Now he’s missing somewhere in my bed. I don’t have anyone to rescue me so I may just name him and offer him pizza, if I see him again. My point is, aloneness from this disease is hard in the strangest moments.

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@Maryam4887

12 Apr 2025 08:04Last reply 4 Jun 2025 16:50

I was diagnosed with Multiple Sclerosis (MS) back in 2018. Since then, I’ve been managing my condition with medications, specifically Baclofen and Pregabalin. Fortunately, I don’t need any other treatments at the moment. While the right side of my body remains weak and I walk with a cane, I am able to carry out all of my daily activities, including driving, spending time with friends, and fully enjoying life—ups and downs included.I recently started exercising, and I feel much better. I truly believe that with consistent physical activity, I can return to a more normal state, though I know I have a long road ahead of me.Thank you for your ongoing support. I’m grateful for the strength and progress I’ve made and look forward to the journey ahead.

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@MickJagger90

13 May 2025 15:56Last reply 19 May 2025 14:04

So I was diagnosed with multiple sclerosis, March 2019 and when I go to the doctor my blood, sugar, oxygen etc is always good. So I wonder if I’m healthy how can I have multiple sclerosis. I remember a neruo doctor asking me if I smoked cigarettes when I was young 🫤. I also learned multiple sc...

Central, United States

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