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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@SugaBug1971 

EditedLast reply

SugaBug1971

I was diagnosed a few months ago with MS. First appointment with neurologist next week ms runs in family my mom my sister my uncle and 3 of my cousins have it

First posted on the Shift.ms app
13

@AcSantos 

EditedLast reply

AcSantos

Can anyone help me,I don’t have insurance so I haven’t been able to receive treatment and I’m mentally getting worse ,I’m trying to get a program but my neurologist won’t answer after a month of calling I just need help so I can stop being a burden and get a job and stop living off my mom cause she doesn’t have anything as it is

Tavares, United States
First posted on the Shift.ms app
21

@etigger 

etigger

I am tired of looking for a job that I have to lay down fatigue moment. Have anybody else having the same problem?

First posted on the Shift.ms app

@Whitters23 

Last reply

Whitters23

Brain fog during intimate moments

Help! My partner knows of brain fog yet hates when I use it "as an excuse" when he asks, "What was i just saying" when he's telling me sonething intimate/petsonal about himself. I honestly am paying attention, but as soon as he asks that question, my memory goes completely blank! I couldn't even tel...
First posted on the Shift.ms app
9

@Jmaqui 

Jmaqui

Brain fog, oops moments🤣

I went to my hospital appointment to see my MS consultant yesterday and we discussed medication side effects and cognitive issues. I take Amitriptyline 50mg at night and he suggested to reduce it or stop taking it as it causes tiredness, cognitive problems. Of course I will be monitored by the doc...
First posted on the Shift.ms app

@deanp 

Last reply

deanp

I’m feeling good at the moment. I’m just waiting to lose a limb or my sight 🤷

First posted on the Shift.ms app
3

@mysonhasm 

Last reply

mysonhasm

Hello, I am a mom whose son was recently diagnosed with MS. He is 32 years old. Prior to his diagnosis, Jeff, had a few bouts with numbness in his hand and face. His primary MD sent him for an MRI and that is where they discovered the lesions on his brain. It took several more MRI's before he was 100% diagnosed. Jeff had 3 doses of IV Steroids and was finally started on Aubagio pills for his MS. He has an extreme stutter since March of this year. He has difficulties walking, numbness/tingling in his hands and feet, constant headaches and difficulties with his vision. At this point, my son is not willing to join any support groups and he appears so depressed. He had to sell his pool cleaning business, originally he had planned of going back into the restaurant business but due to him being unable to do any prep work with a knife and not able to speak do to his stutter he feels helpless. As a mom I just want him to see his worth and take it one day at a time. That is why I am reaching out to this group to hear your stories and hopefully learn a bit more on how to proceed with this disease, most of all for Jeff, at one point, to reach out and understand that he is not alone in this. Thank you.

First posted on the Shift.ms app
3

@Padthai1 

Padthai1

Anyone else having a relapse at the moment. I’ve got the worst one I have ever had. It feels as though my SPMS has progressed into PPMS. I see my neurologist in two weeks time ,so I’ll soon find out !

First posted on the Shift.ms app

@SeanDarling1989 

EditedLast reply

SeanDarling1989

Greetings everyone, I am a 63 year old mom to a 36 year old son diagnosed with MS in May of this year. In July my son lost all his abilities to function in every way. He was in the hospital for three months and now he's in rehab learning to walk, talk, and everything else that this demon disease took from him. We have a long road ahead of us and I have so much to learn about MS I'm terrified but I know that everything is possible with God. In July I was told that my son would never speak or walk again, but now he's speaking clear enough to understand him and walking plus feeding himself. I'm praying for everyone in this community and looking forward to making new friends. God Bless you all.🙏♥️🙏⚘️👌🏻

Sacramento, United States
First posted on the Shift.ms app
29

@Jessicaannlangg 

Last reply

Jessicaannlangg

Does anyone randomly just feel light headed for a moment but then it goes away?

First posted on the Shift.ms app
17
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