#mom - Shift.ms

@bigdill306

22 Jul 2025 21:08Last reply 24 Jul 2025 17:14

Hey everyone 👋 I’m Dylan, a 38-year-old guy living with MS out here in Saskatchewan. I run a legal weed dispensary (yes, I’m that guy), and I use dark humor, sarcasm, and a whole lot of cannabis to get through the weirdness that is life with MS.I figured it was time to find a space with people who get it the fatigue, the brain fog, the “oh cool, my leg’s just doing its own thing now” moments. I’m just here to connect, share some laughs (the darker the better), and not feel like I’m the only one in the snow belt dealing with this.If you're in or around Saskatchewanor even if you're not say hi. I don’t bite. Unless it's a bad MS day and my jaw spasms. (Kidding. Mostly.)Looking forward to getting to know some fellow weirdos on this ride

Saskatoon, Canada

First posted on the Shift.ms app

54

@morbiddelusion

19 Jun 2025 06:34Last reply 24 Jul 2025 12:35

I'm so tired of feeling like I'm not good enough, worthless, alone. I'm afraid that I'll be alone for the rest of my life. Ik that if I'm alone when my mom passes that I won't be able to stop my suicidal ideation from taking over. I have borderline personality disorder and my worst fear is being alone not having anyone to help me walk through the pain that my mom passing will bring. This has been on my mind so much lately. I am honestly afraid of what will happen... I fight with my mental health the most. Besides the fatigue my depression, my borderline personality disorder and suicidal ideation is something I have always had a hard time with. Any feedback would be great.

Ocklawaha, United States

First posted on the Shift.ms app

8

@Jimmy369VT

16 Jul 2025 15:55

Hello everybody, I am Jimmy. I just found this group and a little bit about me. Both biological parents were diagnosed with MS mom in her 20s. My dad and his 40s I have learned to watch for signs and symptoms, but I put them off thinking it can’t be happening to me it skips a generation And then I found out my dad‘s little sister was diagnosed and a cousin that is only two years older than me was diagnosed and I decided my wife being a nurse I might as well not put it off anymore because my body was getting worse. I have lost Feeling in both my feet. My limbs go numb for no reason I cannot stand or sit for long periods of time my bladder does not function the way it should. My balance isn’t the greatest anymore. I am pretty much going through all the same problems. My parents went through And I know I should listen to the neurologist and do everything but it just feels like he already knows he just wants to make sure that it isn’t a disease that mimics MS I know I just have to be patient and do everything but my body is in so much pain sometimes and I can’t sleep But then when I am able to walk around, we have sand spurs here in Florida. I can walk across my yard and my dog can feel them more than I can when they get stuck to the bottom of our feet and when I tell doctors and neurologist that both of my parents Suffered MS, their eyes light up like I’m assigning it to experiment and tell me that it is rare to hear that the neurologist I have studies MS and he says this was the first time he has ever heard of both biological parents having MS. He even showed me studies And it’s either a grandma or a grandpa Paw or a mom or a dad and then I was told I have a 12 to 15% more likely chance of having MS at first I was frustrated and then I was just depressed and then I realized if my parents could deal with it for so long and keep their positive attitude even though their bodies were breaking down And rejecting the things they wanted to do. I have decided that I will listen to the doctors but with everything else going on with me some of the medicines for it I can’t even take because of heart condition conditions or colitis. I appreciate being accepted to the group and I just wish there was something like this for my parents back in the 80s and 90s

First posted on the Shift.ms app

@JenNM

25 Jun 2025 03:16Last reply 25 Jun 2025 21:46

This is mostly relevant. I have found myself living alone because of this illness. A spider just crawled across my arm. I flicked him. Now he’s missing somewhere in my bed. I don’t have anyone to rescue me so I may just name him and offer him pizza, if I see him again. My point is, aloneness from this disease is hard in the strangest moments.

First posted on the Shift.ms app

8

@Maryam4887

12 Apr 2025 08:04Last reply 4 Jun 2025 16:50

I was diagnosed with Multiple Sclerosis (MS) back in 2018. Since then, I’ve been managing my condition with medications, specifically Baclofen and Pregabalin. Fortunately, I don’t need any other treatments at the moment. While the right side of my body remains weak and I walk with a cane, I am able to carry out all of my daily activities, including driving, spending time with friends, and fully enjoying life—ups and downs included.I recently started exercising, and I feel much better. I truly believe that with consistent physical activity, I can return to a more normal state, though I know I have a long road ahead of me.Thank you for your ongoing support. I’m grateful for the strength and progress I’ve made and look forward to the journey ahead.

First posted on the Shift.ms app

4

@MickJagger90

13 May 2025 15:56Last reply 19 May 2025 14:04

A aha moment

So I was diagnosed with multiple sclerosis, March 2019 and when I go to the doctor my blood, sugar, oxygen etc is always good. So I wonder if I’m healthy how can I have multiple sclerosis. I remember a neruo doctor asking me if I smoked cigarettes when I was young 🫤. I also learned multiple sc...

Central, United States

First posted on the Shift.ms app

20

@jamoranto

11 May 2025 22:19Last reply 16 May 2025 07:06

Happy Mothers Day Moms

https://youtu.be/OZRYzH0Q0pU?si=A9CNFXNvFnkXXZbe

Langley, Canada

3

@MarcuswithMS

25 Apr 2025 13:12Last reply 26 Apr 2025 12:19

If I wasn’t a parent I’d just give up. What do you all do when you feel this way. Reason being my condition is just too much. Simple tasks like helping me take the dogs out for a walk or to use the rr is a man’s job. I feel like Mr. mom I’m here to serve and help everyone but no one helps me like even picking up our children when I have vertigo or anxiety. I’m

First posted on the Shift.ms app

5

@Dermiss

6 Apr 2025 16:05Last reply 6 Apr 2025 19:18

My moment of anger

So I had my first real flare up with MS actually at the end of 2023 and I didn't get officially diagnosed until the end of 2024 (it was a pain to set up all those MRI appointments, which was why it took so long) Anywho, sometime after I got the diagnosis, I had to return to my day job at a fast foo...

First posted on the Shift.ms app

3

@chloirene

1 Apr 2025 09:23 EditedLast reply 4 Apr 2025 01:50

Hello! Has anyone got advice on how to support fatigue? I’m suffering with a really bad phase of it at the moment. Except from rest is there anything that helps? Thanks!

First posted on the Shift.ms app

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