#help - Shift.ms

@katannya

18 May 2025 16:34 Edited

I learned recently that I had an abnormal MRI 7 years ago,with abnormalities the radiologist stated were consistent with MS, but the neurologist generated a false report that stated that my MRI was normal. I also have been diagnosed with POTS, EDS, and am in the process of trying to get a formal diagnosis for MCAS. I live in area where the bafiatric pressure is always changing. I was wondering if living somewhere with a lowere bariatric pressure had been helpful.for anyone? Or if living somewhere where there is less variables in the bariatric pressure? Ive noticed improvement with lower bariatric pressure or even just even bariatric pressure. . Idk..has anyone here moved to a climate that works for them?

First posted on the Shift.ms app

@emzxx

17 May 2025 12:32Last reply 17 May 2025 18:53

Sativex

Hi is anyone taking Sativex? Just wanting to know if anyone else gets the dizziness and nausea with it. It's brilliant at helping with the spasms but feel terrible with it 🙈

First posted on the Shift.ms app

@carilyn1970

16 May 2025 23:27Last reply 18 May 2025 15:17

I have been diagnosed since 1994. My past flare ups have involved going numb on the right side. Then vertigo, then opticneritis. (forgive the spelling) now. I don't know if what is happening is MS or something else entirely. But, I have fallen down twice in the last 6 weeks. I am going to see...

First posted on the Shift.ms app

@eldhino

16 May 2025 09:13Last reply 17 May 2025 08:37

1st time. Advise is more than welcome

Hi to everyone, new member here and 1st time trying to admitt to myself that I have MS. Only one in my family and extended family to have it. My name is Nick and I'm 41 in July. I got violently ill on 2nd November 24 and diagnosed 17th January 25. As I'm writing on here today 16th May, I am still so...

First posted on the Shift.ms app

@Rage_against_ms

15 May 2025 15:07Last reply 15 May 2025 15:20

Birth Control

I might have to go on birth control, I'm single so definitely not sexually active, hormones are raging and horrible or would I have to change treatment? I'm scared atm what do I do? Any help would be appreciated thx

First posted on the Shift.ms app

@Manxgal75

14 May 2025 13:01Last reply 15 May 2025 07:28

Fatigue

Ok, so how does everyone deal with their fatigue effectively? I just can't. I still work 30 hours.in care, and that still leaves things needing doing at home. So on m6 days off, I'm washing clothes, hoovering etc. I keep going until I'm worn out which has put me in a constant deficit. I try to slac...

First posted on the Shift.ms app

@carmenrivera

13 May 2025 15:59Last reply 14 May 2025 04:02

Hi everyone, going to start Ocrevus soon, need some pointers

Sharing my experience with Kesimpta, I was really hoping for it to be it, the one that would help but it sent me straight to the ER with how bad the side effects were unfortunately. Currently my insurance just approved me for Ocrevus, someone wants to share experiences with me about this medication...

First posted on the Shift.ms app

@mightykae

12 May 2025 21:58 EditedLast reply 12 May 2025 22:05

Walkin' to feel better.

Ok, so thanks to my pre-ms weak self I dontbhave a ton of muscle mass. And now apparently, on top of MS, and potential POTS, i am at risk for the diabetes. So, inspired by my mom ive started walking at local parks with a goal of hitting a mile a few times a week on good days. I do use a cane here an...

Millcreek, United States

First posted on the Shift.ms app

@lynnlynnlynn

12 May 2025 17:37Last reply 12 May 2025 18:33

Foot drop

https://www.bbc.com/news/articles/cwy6wz8vnx0o Have a look at this link if you suffer from foot drop. Edinburgh University are developing shoes that might help without having to use a splint in the shoe..... I find these so painful it is hardly worth it. I am excited to see there might be an alter...

It's just a pair of shoes - but they're life-changing for me

Researchers in Edinburgh have developed a shoe that can help people with MS, cerebral palsy or strokes.

www.bbc.com

Rushden, United Kingdom

@Rage_against_ms

12 May 2025 14:22Last reply 12 May 2025 14:39

I have decided

I have decided that I will not delete my account and just take breaks when needed, I love interacting with you lovely lot, it just overwhelming sometimes and I'm not happy and struggling atm, no I don't need help I will deal with it myself as no one can help me, I'm sorry 😞

First posted on the Shift.ms app

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It's just a pair of shoes - but they're life-changing for me