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I think we can all agree that one of the worst things about this disease is all loss that one has to deal with because of it. I am very disabled now. I cannot walk, I cannot work, I have trouble speaking at times, swallowing is now becoming a chore. I have a Supra pubic catheter. I am beginning to ...

As with many of us, I was quite fit back in the day. For many years, I sold phones. 📱 I knew how to talk; when I spoke, I could charm the birds out of the trees. My best friend completed an Ironman last year. He then died of a brain tumor two months later—just seven weeks after qualifying as a cha...

So I had an appointment with my neurologist today and I have a new lesions my medulla oblongata. OK so that is shit. But then I had to go home and tell my partner which has upset him. And I will have to tell my mum and my sisters. I don't like people being worried about me, I'm pretty much ok as fa...

Hi all, I recently moved from Hampshire up to central Scotland and have found myself completely without a community for MS. Hampshire has a thriving community for patients and carers but up here there's nothing it seems. Does anyone fancy a pint and a whine about the state of neurological care up he...

During the years before MS became a BIG part of my life my family had the opportunity to travel, ski, join clubs and make enough to have fun. In 2011, while visiting family I started to have double vision. I was worried so the next day I saw an Ophthalmologist who said my eyes were fine. The follow...

Being kissed on the lips whilst your asleep is the greatest form of love, unless you are in prison.

It's my beautiful daughter's birthday today and it set me to remembering the day she was born by planned C-Section (because she was predicted to be 11lbs!) It was a fabulous day and we were so happy to have our last baby as I was 37 and had undergone a very traumatic emergency section 6 years befo...

After the mess the last few weeks. No new lesions. No contrasting lesions on brain or spine. No active signs of disease.

Dx 2011, 40yr old, RRMS An incredible opportunity has come up for me: trekking the Annapurna Circuit in Nepal this spring. I've had MS Clinic appointments over the last few months, one of which was today with my physiatrist. I have a referral in place to get Botox to help with drop foot on my left...

Hi everyone, I use to have an account here but I can’t remember my login details and forced into having to create a new account. My name is Jamie, which I think I used “JayJay” on my other account. I am 30 years old and have now settled down with a loving partner that also has MS too which I find c...