@BuckGrundle 

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BuckGrundle

My hardest loss

I think we can all agree that one of the worst things about this disease is all loss that one has to deal with because of it. I am very disabled now. I cannot walk, I cannot work, I have trouble speaking at times, swallowing is now becoming a chore. I have a Supra pubic catheter. I am beginning to suffer with neurogenic bowels, I can’t feed myself, and my hands and arms are almost useless. I’ve taken all these things in stride, and I really don’t let them affect me too much. They’ve kind of become a part of my identity, and I really do my best to not let them stand in the way of enjoying day-to-day life. I’m not really all that depressed, and for the most part all things considered I don’t have very many complaints. Except for one thing, there’s one thing that I have not been able to cope with effectively since being diagnosed with multiple sclerosis. The fact that I can no longer enjoy food with condiments, Specifically ketchup. The vinegar does something to me that makes me feel incredibly ill. I’ve tried everything to try and sidestep this. Sauces, gravy, cheese, you name it! I’ve tried just about everything that doesn’t have vinegar in it as a substitute for ketchup. But there is nothing that even comes close. Walking is overrated, I always have my own chair everywhere I go, and I have the greatest excuse to not have to do chores anymore. But the fact that I have to eat dry hamburgers, and french fries really pisses me off, sometimes, like on a visceral level.lol
@Windwatcher

Neurogenic bowels? Is that what happened to me? Mark, damn friend, I was reading with suspense then I saw "ketchup" and nearly spit my coffee laughing. And I know you're not joking. I bet you discovered ketchup as a kid and it was A VISCERAL EXPERIENCE. And now it's just pissy sad that you can't have the one thing that makes a hamburger worth living! CRAP, now I mad too! Let that anger and sadness roll for as long as you need too. We're here for you. PS: I thought I had Alpha-GAL, a anaphylaxis reaction to mammalian meat. Before I got to the allergist I stopped eating all meat and I thought I'd die craving beef so I can relate a tiny bit. Alpha-GAL tested negative. That's why I said " neurogenic bowels?"

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@emmajoanne1

A burger without ketchup? That’s a horrible thought. Please don’t take this the wrong way, but I enjoyed reading your post. You have a lot going on with your MS but your focus was on the lack of ketchup - it cheered me up. Thank you x

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