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Ok, so how does everyone deal with their fatigue effectively? I just can't. I still work 30 hours.in care, and that still leaves things needing doing at home. So on m6 days off, I'm washing clothes, hoovering etc. I keep going until I'm worn out which has put me in a constant deficit. I try to slac...

Last night was scary... I had just come in from the garden, stood up and felt of balanced and legs went to jelly, took a slow walk indoors... Got inside and was by dinning chairs went I felt the MS hug.... It kept getting tighter and tighter, pins and needles started down both arms, pain in my chest...

It now takes approximately 3 hours from getting out of bed to heading out of the door for our daily dog trundle. 3 hours🙀 I used to be up and out in an hour!!! So much slower now with limited mobility and impaired vision. I know it can't be helped but it's so frustrating. How about you? How long...

Hello everyone, I was scrolling on Facebook and seen this pop up. I’m not really sure what I’m hoping to get out of this, maybe some direction or what has and has not worked. This is my story. May Memorial Day weekend of 2024 I started shaking when lifting a bottle of water, loosing my words mid s...

I am sharing my personal MS journey this MS Awareness Week, because I want other people suffering with this disease to know that they’re not alone in their experiences. There is plenty of hope, laughter and joy to be found alongside MS, and I hope that through sharing my story, I can help others fin...

How does everyone feel going out in the hot weather?

Good day to everyone. This is my first time joining a MS group, I've been dealing with MS since I was 16, diagnosed at 19 and I'm 32 years old now. I have been dealing with social anxiety that has greatly impacted past relationships and any possible relationship ahead. I feel as being up front and ...

I'm losing motivation to keep going on. life is so dull and everyday is the same routine. it seems like I will never be able to live again. everyone around me have the energy and joy to travel, work, and enjoy going to outings. I'm here unable to be happy, laying in bed in the dark because everythin...

https://youtube.com/shorts/1bRb9zqiF4E?si= I’ve made the decision to guinea pig myself again and do this treatment out in Mexico. I’m going to become a Grandma in July so I will wait until after the baby is born just to make sure in case I do have a heart attack lol you guys will be the first to kn...