#ms - Shift.ms

2 Aug 2025 20:37

Tysabri

I was diagnosed in April of this year and due to the number and location of lesions, recommended infusion Tysabri once a month. I had my first infusion and felt like I had a hangover for a month with some heaviness in my legs. My second infusion was a week ago and three days after my infusion I woke...

First posted on the Shift.ms app

@Falcon

2 Aug 2025 18:16

Back pains

So I woke up yesterday with lower back pains, painful enough to not let me stand up straight. I figured the muscles were tight or sore so I tried to stretch them out, but it lasted all day. I knew it had to be MS related because I had no indication of pain in the prior day . It’s Saturday I wake up...

First posted on the Shift.ms app

@LollyColleen

2 Aug 2025 17:10Last reply 2 Aug 2025 21:16

MS drunk feeling?

Hello friends, I apologize for any typos. I woke yesterday and just felt "off", but it worsened throughout the day. I was a pinball down my hallways and loopy. I woke today to the same feeling and cannot walk or talk properly. i sound and act drunk, but I don't drink. Ever. A Google search told me...

First posted on the Shift.ms app

@AndersonRa

2 Aug 2025 15:23Last reply 2 Aug 2025 16:39

Sooo irritated 😣

I can’t understand for the life of me why people who worked hard all there lives get punished for disability…I’m told my social security is too high bc I made too much when I was working but do the math…no food assistance no housing assistance no Medicaid…how are you supposed to live a check once a ...

First posted on the Shift.ms app

@fdr99

2 Aug 2025 10:44Last reply 2 Aug 2025 12:01

Bad MS Day

So spoiled my clothes with people at my house barely could clean up afterwards managed to take a shower and get into a fresh change of clothes. We keep moving cause guess what the world could care leas if people like us exist or not 😂

First posted on the Shift.ms app

@SShaw2020

2 Aug 2025 10:06 EditedLast reply 2 Aug 2025 11:05

Infusion of Ocrevus

Does anyone get heightened symptoms when close to their next Ocrevus infusion? I’ve been so bad with pain this week and I’m due on Tuesday. Today my chest feels so tight and I keep getting palpitations. Accompanied with Sharp pain in arms and a weird feeling in left side of face. I’m worried thi...

First posted on the Shift.ms app

@Phili

2 Aug 2025 06:37

Hi all. So I was diagnosed with MS last year October. Only four months ago I was prescribed with Tecfidera and then Kesimpta. Now my challenge is I am in Eswatini and we do not have these drugs. I’ve tried South Africa but it’s so difficult to get. Found everyone.org online but they require me to have a pharmacy license and their prices are through the roof. Can someone suggest where I can look or how I can go about getting the medication for someone in 3rd world Africa?

First posted on the Shift.ms app

@chrissydoz

1 Aug 2025 21:53Last reply 1 Aug 2025 22:20

MS vs normal weirdness

Before MS my body would do something weird and I just shrugged it off. After MS anytime something slightly unusual happens I’m over here wondering if it’s a new symptom! I’ve always been a klutz but now every time my body doesn’t do exactly what I want it to I’m questioning if I should call my neur...

First posted on the Shift.ms app

@lisams01

1 Aug 2025 19:30Last reply 2 Aug 2025 20:56