@maggiesArt 

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maggiesArt

Brand new with questions

I am 66 years old and was diagnosed with lupus in 1998 and with rheumatoid arthritis in 2000. I have had 10 surgeries in 15 years. I kept right on going with my life because I love life I'm an artist and I see life with awe. My first symptoms were these nerve muscle contractions that I coined as worms crawling, in my upper torso that would contract and relax and sometimes what happened 50 times a day. Every time I've bent over they would happen and sometimes in the back and sometimes crawl over the neck and sometimes crawl up to my chin and bottom lip. Now I have right arm my dominant side, experiencing weakness and in the shoulder bicep and down into my fingers extreme pain and weakness where I can't do my art. I have also developed double vision blurred vision some trouble swallowing. I took these to my regular doctor who ran a brain scan and said there were some lesions and has sent me to an MS specialist. I'm also having problems in the bladder department not able to go. Seems so strange to be sharing these things with people I don't know but every doctor I have which is five for all my specialties say they believe it's Ms and that's why they send you to specialist. I can't get in until mid August. My question is this have any of you had any of the symptoms that I list above especially the squeezing or warm crawly kind of feelings that feel electrical. It would just help me to know. Hello to all and thanks for being here. Maggie
@DonnagayleMS

Thanks I was Diagnosed MS & Lupus. 1991, vampires blood Draws. Lupus Was no Longer? Numb from the Chin Down. Just got back from my Neurologist. Already got a MRI! She said my Blood Draw she need’s Before my Next Briumvi! At 70 Years Old I will be Taking Off? Praying For Stem Cell’s?

@TomDonahue

Wishing you the very best in your journey. Look into Red Light therapy for possible relief. Check out the MSingLink with Dr. Gretchen and her latest podcast(Spotify )on Red Light Therapy. Let me know if you need for me to share the link with you.