@tara99 

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tara99

Close time frame in relapses.

Hi there, I am new to this site and would love some reassurance or perspective as I feel I am going mad. I was diagnosed nearly 8 years ago after my first son was born. I stayed off treatment as we were wanting to have more children and had a few different opinions from various neuros. Fast track to now and come October I had another relapse which resulted in severe altered sensation in my lower body but thankfully I was still able to walk I just looked a bit unsteady and wasnt going far or fast! I had a dose of IV steroids and was recovering slowly. At the end of January I started on tecfedera and it was all going pretty well until mid feb when I had a case of optic neurosis so more steroids, during this time my legs have felt weaker again and I am now terrified of what may lay ahead of me. Does anyone have a similar story who can offer a bit of hope? Each time I talk to a dr they say they can't tell what will happen from here which I know they can't but surely they can say something? I am terrified and panicking that it has changed from RRMS to something worse. I would love for anyone's advice or anything at this stage- I feel like I'm drowning. I have tried to stay positive throughout this but this last relapse so close together has knocked my confidence and I am trying to keep a rave face for my three beautiful kids and husband but each day is getting harder.
@holly12345

Hi there I totally feel for you and understand how you are feeling. I was probably feeling like you only just a few months ago. I was hit with a very aggressive relapse last August, numbness, balance but worst of all optic neuritis.(tests confirmed I was partially sighted) All totally debilitating. Had 3 lots of IV steriods which didn't even touch me. I have young children also and I couldn't do anything. Had Lemtrada late November and it made a little difference not huge but something. This has given me hope that I still might make some more improvement, I may not but I keep onto the hope. MS is a nasty unpredictable condition which affects us all so differently and that's why you and I have the very annoying responses from our neuros that they don't know how it's going to go!!!! You just have to take it day by day and don't stress as this will feed your relapse further We are all here for you Rebecca x

@TracyD

You're relapsing through the current DMT, it's time to get onto something more effective that can stop the relapsing. Do some research, I'm personally biased because it's been so awesome for me and stopped my highly aggressive RRMS in it's tracks. Take a look at Lemtrada - it's the most effective treatment currently available and with it only being 5 consecutive days in year 1 and 3 consecutive days a year later in my opinion is the least invasive to life treatment for my MS :-) xx