Crap treatment
Has anyone else noticed that if you have ms professionals seem to think that you don't have a life? I was diagnosed 15 years ago and have been really well until 3 years ago. My job then was kick boxing instructor and I was running 6 miles a night and walking the kids to school about 30 miles a week on top of weight lifting and other exercises. When I became really bad with my mobility they told me I should try to do more! OMG I do more than most people! I can't do any more otherwise i'm not moving at all! I know more about anatomy than most but they still think i'm stupid, GIVE ME STRENGTH! !!
@donnal , I feel that MS professionals have to adopt an approach that works for all. They can't go wrong if they pitch for the lowest common denominator. But, you're right, you know your body. We're all different, with varying degrees of motivation. :wink:
I've found that too, especially with certain MS nurses. I work in a biomedical profession and know a lot about MS and DMTs and am very familiar with drug trials, drug licensing etc as I deal with it in my day to day job. Yet I still had to endure an hour long appointment with a nurse reading parts of leaflets to me to "help me understand what MS is". This, despite me repeatedly telling her there was no need. I just felt like she needed to tick a box to say she'd read all of the leaflets to me!! So very exasperating. Hang in there and try to be assertive about what you know and direct the conversation to what you want it to be about. I've also had a fantastic interaction with another MS nurse who was able to pitch the conversation at the level I wanted it and I found it really helpful. I just try to make sure I see her now, and refuse appointments that I think will be a waste of everyone's time (and NHS resources).