Last reply


So fed up with DMT plegridy avonex :(

Hi all. I have been taking plegridy which is an updated version of avonex ( I think. ) ... And I take it every two weeks ( self inject ) and I makes me ill for near to a week with side effects, the first two weren't as bad, as they were lower dosages but the others , which were full dosage have been so bad, I feel like its ruining my life as I can't work or do anything at all, especially if it's just after I inject. I have to plan everything down to a tee, as I know I'll be bed bound with flu for three to five days. Or just be 'not right' to go out etc. I'm so fed up. Please can you tell me if it will improve. I'm seeing my nurse soon to discuss coming off even though I have only had about 7 injections in all. The shivers and shakes happen a few hours hours after the injection. They are the worst, and then the flu comes. And nausea. Light headed and even sometimes mild depression. Anyone else try this ? or persevere ? or come off? I would love to hear from you, thank u xxxxx hugs n love

Definitely don't suffer! What you describe is clearly a drop in your quality of life. When you talk to your MS nurse, ask to switch. There are other options and with DMDs it's horses for courses. xx Kay


@pinkyx , I totally agree with @cameron . Not every medication works for everybody - we're all different. You've tried this DMD and it's caused problems, there are other options. :wink: