My Story
So I joined this forum a few weeks back but never really introduced myself. My name is Marc Goldberg and I'm 24 years old and live in Newcastle upon Tyne and I would like to tell people about my experience of getting diagnosed (warning though its a long one).
My story started about a year ago when I woke up one day with a strange feeling down my left arm and it was really itchy along with my fingers feeling like they were being pinched by a crap (and at 1 point not being able to move one of my fingers at all). Went to the Doctors about this and was told it was a trapped nerve so to just take it easy and it should clear up. Well my arm healed, my hand didn't. Come February, my hand is still bothering me but this time the strange feeling I had on my arm was now down my entire left side (without the itchiness thank goodness) so I went back to the Doctors and was told it was still a trapped nerve and give it more time to heal and if it didn't go back. So I went to Dallas at the end of March, my left side was clearing up and I was getting more strength back into my hand but unfortunately, for some unknown reason I started limping and my balance was strange (I put this down to long flights and weakness in the knees), so come April I've finally had enough and went back to the Doctors for a third time, was told once again it was most likely a trapped Ulnar nerve but after explaining how long it had supposedly been trapped she referred me to a Neurologist.
So come May I see the Neurologist and he does a few tests (a point almost started arguing as he kept telling me to relax even though I was :P ) and he didn't believe there was anything wrong with me but to be certain he arranged a spinal MRI and an EMG test. Lucky for me, I managed to get both done 2 weeks later but during my EMG test, the Doctor was doing a test for both my arms and it showed that there was constant muscle activity when there shouldn't of been any as I was relaxed so he thought it could be a case of Dystonia. Around this time my bladder also starts acting up, everytime I went to the toilet I felt like I needed to go right away again but this lasted for less than a week so I jusst put it down to an overactive bladder. A few weeks later I get a letter from my Neurologist to go back and see him and I'm thinking, they've found something big otherwise why go back and see him. Of course I was right when he told me they found lesions in my spine so I had to get an MRI scan again along with a Lumbar Puncture. So come July/ August time my limping has cleared up, the funny feeling down my left side is gone yet my balance is still a issue and my hand hasn't fully healed. I get more letters explaining that my results show signs of a demyelinating disease (MS) so of course I get depressed and I end up breaking down at work a few times where I have to finally come clean to people and explain to them what really is going on.
So I get these tests done, had to have 8 scans done (some with contrast) during the MRI scan and my Lumbar Puncture thankfully went fine, next I play the waiting game. So I finally see my Neurologist once again at the end of October and he explains how he wasn't happy with the test results as it did show there was something wrong with me so he has referred me to a specialist and there was nothing more he could do but he feels my condition is MS, but at this point I've accepted the fact that this is the likely scenario so it didn't bother me. November 3rd 2016 comes along (a date that will always be in my memory) and I see the specialist, I tell him everything that has gone on and he does a few tests, then he tells me I have MS. After everything I've told him and my test results he couldn't think of anything else it could be and he's recommending the Lemtrada treatment since I'm young and have had multiple relapses this year.
So what happens now? Well, I need to have one more MRI scan on the 15th December then on the 9th January I finally meet a specialist Nurse to discuss the treatment and any next steps. Right now apart from my left hand still being dodgy, balance issues, a constant stuffed nose and I tend ulcers in the mouth a lot more now, I feel fine, just a bit fed up from all the waiting as I just want to move on. I have MS, I've accepted it and I'm not gonna let it ruin my life, as I'm still going to Orlando at the end of March and I'm gonna have a great time.
Anyway, thanks to this forum I can finally get this off my chest even if no one reads it and if you did, hopefully I didn't bore you too much.

@marcyg921. Hi Marc. I got to the end!! I find that having exciting things to look forward to helps my sanity too! ?
@marcyg921 , your tale is not uncommon regarding the complexities of getting a diagnosis of MS. GPs do their best, but look for an easy (and possibly cheap) answer, until the problem doesn't go away. It seems that you are now under the right specialist, who is pushing forward proactively for you. Lemtrada appears to be the most efficacious treatment available. And, with age on your side, your prognosis must be looking favourable. So, you now know what's been causing your recent problems and something is being planned to treat it. All that you can do now is take things easy and relax, whilst the wheels of bureaucracy slowly turn. :wink: