@Katie_Harrison 

Last reply

Katie_Harrison

Newbie!

Hello! My name is Katie Harrison and I live in a remote town called Consett, County Durham in the UK. I am 28 years of age (soon to be 29). I'd like to share my story of how I came to be diagnosed. In the July of last year, I experienced a burning sensation in my left foot. A week later it started in my right but wasn't as strong. This occurred two weeks after I had been knocked over by a teenager on a pushbike who'd lost control. It lasted for four to five weeks. Then the burning stopped but in October it started again worse than it had been before. Both times I went to the doctors but was told it was likely muscle pain possibly related to Sciatica. Then at the back of November, my sight was affected. It was later diagnosed to be Optic Neuritis. My vision has returned although at times things can still seem cloudy, after having my eyes checked there doesn't seem to be much change. I had my first MRI scan at the end of April and last month I was diagnosed with RRMS. My Grandad had MS and sadly passed away in the 80's in his thirties. I am not far from entering that stage of my life and while I know MS is variable and affects everybody differently I am scared the same could happen. My mum was 13\14 when he died and someone that meant the world to me left me when I was 13. My siblings are coming up to that age and it makes me even more fearful that history will repeat itself. I am trying to remain optimistic though. I have received information about treatment. Most of it was about a drug called Lemtrada and another called Cladribine. I'm not sure if these are the only options I have, or whether more will be discussed with an MS specialist, but reading about the side effects of both treatments scare the crap out of me. The diagnosis has thrown everything to the wind. My husband and I were planning on starting a family at some point in the year. The Neurologist I saw said it shouldn't stop me which is probably why he chose those two treatments specifically. But I am scared of having children and not being around. I am due to see a specialist nurse this Thursday afternoon. The plan was to try for a baby before starting any treatment but failing to lose any weight that doesn't look like an option anymore. I didn't want to start just to come off again, but it may have to be what it is. I am still indecisive about what treatment will be best for me. I have my own set of questions, but is there anything I should ask about in particular? Thank you for reading! :)
@Highlander

Hi @katie_harrison thought I'd be second to none to say hi.

@Stumbler

Hi @katie_harrison and welcome. First things first, MS is not a terminal condition. MS may complicate a condition that might be terminal, but the MS will not kill you. Secondly, medical science has moved on in leaps and bounds. Your Granddad didn't have the benefit of any specific MS treatments, Disease Modifying Therapies (DMTs). Now the number of treatments is into double figures! Yes, DMTs are powerful treatments and come with risks. But so does MS! However, the risks associated with DMTs are known risks. They are monitored for, with corrective action taken if the risk becomes too great. So, there is a lot to think about. The following will give you some idea of the DMTs available :- https://support.mstrust.org.uk/file/store-pdfs/MS-Decisions-ALL.pdf And finally, this Forum has a bit of a motto. It goes, "we believe that MS doesn’t mean giving up on ambitions, just rethinking how to achieve them." So, don't give up on starting a family. It's all achievable as some of our members will testify. So, sit down and take a deep breath. Your life is going to continue. Just live healthy, eat healthy and, most importantly, avoid allowing events to stress you. Feel free to ask any questions that come to mind. :wink: