Finally got an apt with neurologist from referral from eye dr. Have had symptoms come and go for years. I’m to the point where I can’t do anything I used to. Activities have to be done in small increments with rest in between. I have to hold everything with two hands not to drop things. I have broken so many dishes it’s ridiculous. I use cups with handles now. I have coordination issues. Trouble walking at times, I have to take my time. I HURT EVERY DAY. I have trouble swallowing. Digestion issues. I vomit frequently. I CANNOT handle heat. If I get hot I get really confused & weak & my vision goes whack & I have trouble with depth perception. I have pins and needles. Numbness. Shocking sensations in my fingers. Right side of body. My lips go numb at times. Once I woke up & it felt like my foot was frozen or something.. this only lasted a few days. I have been tested for various things. Everything comes out normal except for slightly elevated bloodwork and inflammation found. I have lost all of my friends because I have broken so many commitments trying to keep up with my life. They don’t understand and without any type of diagnosis what can I say? I “think” I have a neurological condition? I feel guilt constantly and a loss of control. I was a successful hairdresser & I can no longer do hair. I have no one to talk to because I feel like I sound ridiculous listing all these things and no one wants to hear anyone complain. I feel like I’m in stuck a glass box watching life go on without me and I just get so pained that I can’t enjoy the things I used to. I miss my life so much. I feel so alone and scared. Did anyone feel this way before a diagnosis? Did it get better with treatment? Any advice for diet? #mom #diet #troubleswallowing #chronicpain #heatintolerance