Last reply 1 month ago
Newbie..

Hi everyone , just got newly diagnosed with ms..Back in January had optic neuritis treat with steroids..In may I was at work and was dizzy and vomiting sweating..Ever since has been a down hill..I had vertigo and paralized left side of the body and liver virus for 5 weeks ..I had kidney and urine infections and ear infections..my eye sight has dwindled..I had 3 MRIs , cat scan heaps of blood tests finally a lumbar puncture and blood conformed it..I can not take any ms drugs at the moment I see my neurons in September ..But I do take gabapentin for nerve pain all through my body.But also I take a medication protandim which is the natural form of trifedra??? (Sorry don’t know spelling) so no nasties .I’ve been taking that for 3 weeks , but needs time to get in system. I also take vitamin D , olive leaf extract ( for immune) Gabapentin for pain relief ..I’m hoping to get off the pain relief next when I see my Dr. I have had trouble through all this 3 months of throat tightening and my tempreature regulations..The throat thing might have been caused by stressed so destressing went to see first time a kinesiologist..So looking forward to the next appt..I can’t work right now as I’m sort of in limbo until I get a medical clearance to work..has any body else had heat and cold temps hard to regulate and what to do? And also eating warm or hot foods having issues…so if anyone wants to start on protandim let me know, all natural instead of the synthetics from all the other ms drugs . its not for everyone watch a video on youtube about it..but would love any feedback of anyone else’s experience x

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sherrilyn_caron
1 month ago

It sounds like you have a lot going on, I’m sorry to hear it. I do struggle with heat and cold too, it seems like MS makes it difficult to cope with fluctuating temperatures. MS has so many symptoms and it’s different for everyone, it makes it hard sometimes for people without MS to understand.

I’m not sure about the Protandim, apparently it’s a mixture of 5 herbal supplements (milk thistle, bacopa extract, ashwagandha, green tea extract, and turmeric extract) so I don’t think this is a natural version of Tecfidera really. Tecfidera was previously marketed in a similar form as a treatment for psoriasis, and it was less expensive in that form than it is now. But that’s the way pharma goes, prices go up it seems.

I hope your visit with your neuro next month goes well.


rebecca_adams
1 month ago

Yes protandim is the natural version as the person who sells it has had ms for 10 years ..Its all about diet as well ..my friend only takes protandim she has been on it two years 1 tablet every day ..she detoxes her body also in fresh fruit and vegetable juicing natural ways…her last MRI was stable and she hasn’t been on any pain relief..I have just started this medication it won’t hurt your body as its all natural. .so I haven’t got anything to lose..I’m with out pain due to my nerve blockers I’m taking..I can walk around I’m just starting to get back into normal everyday things ..due to me being sick with no pain relief given. Everyone is different with their ms…I’m just letting people know the natural ways it may suit some people..I don’t drink coffee ..I drink water from filter only so no metals and nasties go in my body..I’m on herbal toothpaste I’ve changed my soap and shampoo and conditioner and clothes washing powder to go natural..I’m working so hard on my body to go natural as possible before I see my neurologist to show her how I have improved ..by changing simple things in your environment as well as diet and exercise…I’m just getting back INI normal stuff..I can get back to work yet …yeah I had a lot going on before as I reacted to a hepB vaccine people with ms can have relations to vaccines..and bad luck for me I did…so no more vaccines for me as I went through hell…now its just getting the natural stuff in my system ( takes time) but I’ve chosen that road at the moment as I have nothing until see neurologist.. Which in September if I have improved I won’t be taking the ms drugs .


vixen
1 month ago

Hi @rebecca_adams, wow, you have really gone through it this year! Do you feel that things are starting to stabilise at the moment? I struggle a bit with temperature regulation. When I got diagnosed nearly three years ago I had a bit of throat tightening but didn’t get it since. I wondered if that was stress related at the time. When you do see your neuro, I wou,d take someone with you who would be able to make notes for you, as it’s a lot to take in. I guess first, they will need to establish the type of MS you have. You could Questions like if there is an MS nurse service available. If you are researching, always stick to official sites like MS Society or Trust, or hospital information. Good luck, hope you feel better soon!


rebecca_adams
1 month ago

Yeah the throat tightening is most likely caused by stress.that’s why I went to see kinesiologist to distress me as I have had a lot going on in the last 3 months..so I have been trying to stress less ..my sister also has ms she has had it for 13 years.. So I have people who are close going through it with me ..which is a great support..once I can get my temp back to normal and throat ( normal as possible) I can try and get back to work..but slowly slowly little bits each day I accomplish helps me in my journey…


rebecca_adams
1 month ago

Yes I’m starting to stabilise.. I’m just taking it one day at a time ..see how I go..


vixen
1 month ago

Right, my sister has MS too! Yes, one day at a time, little by little is the best way to go 🙂


rebecca_adams
1 month ago

Yeah I’m just trying the best thing for me at the moment..I feel way better than 3 months ago and even a week ago..so I’m going to keep positive and try and get back drinking and eating properly so I can get my energy back and my body can get regulation..thank you so much for positive support really appreciated.. I will keep everyone posted on all achievents …good luck with your journey as well ..its great to have a forum like this..

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