I saw my neuro Thurs at relapse clinic after leg pain not easing despite gabapentin. He said my MRI scan back in may that led to DX was a terrible mess with multiple lesions glowing. He was surprised I was only presenting with one symptom at the time. Since then I’ve developed burning feet, bladder retention and my mobility has gone from 100% to maybe 10% in that short time. He gave me a prescription for steroids, took blood and urine samples and is booking me in for a Lumbar puncture in around 5 weeks. He also gave me info on DMD to start straight away after he gets LP results. Said it should show any lesions on spinal cord. Head was spinning. If there are lesions on the spine and these steroids have no effect, does that mean my mobility is unlikely to improve much? He told me to keep on the gabapentin, said it could have been working and I could be in real pain if I wasn’t taking it any more.
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