Last reply 4 months ago
Lemtrada results year 1

Hi everyone
I just thought it may be helpful to anyone starting the Lemtrada journey to pass on my experience of Lemtrada 3 months following round 2.
So I was diagnosed with RRMS August 2017 and started round 1 at the end of November 2017. I had a difficult year, very fatigued for the entire year and all my symptoms. (balance, left leg weakness and some mild double vision) appeared to get worse. I didn’t consistently stay active which I think was a BIG mistake…so a year on I have had round 2 and my follow up scan to see where I am after round 1. Fantastic news…my MRI is stable…so no new lesions at all and I am now addressing all of my physical symptoms with a strict 5 session a week gym session with a physiotherapist….and I now have hope that I can get back to normal (apart from maybe my mild double vision). So basically my experience of Lemtrada has been really tough, it’s a long hard road, and I often wished I had never had it…but it has worked….. No relapse since Aug 2017 and for me….the right decision in the end…😊

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4 months ago

That’s great news!
Long may it continue on the up.
Happy trails.

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