@Thyasis_Barber 

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Thyasis_Barber

Hello! I’m new

I was recently diagnosed on October 5 of this year. It was one of the scariest days of my life. I thought I was having a stroke, my entire left side of my body went numb. I could walk without stumbling and I could barely talk. Last month was a complete world wind for me. I’m still talking the steroids and still numb, tingly, stiff, tight and sore the left side. My speech has almost returned to normal. I choke more often than ever whenever I swallow. I seem to cry all the time whenever I talk about what is going on, even if I don’t feel all that sad. How long will this last? I’m on my 4th week of the steroids with one more week to go. I’m waiting for my insurance to agree to pay for Tecfidera. I haven’t been able to return to work yet, I’m a Director for a Medical Billing company. The amount of stress that I’m under at work is not something that would be conducive to my new diagnosis. Whenever I even talk the CEO in regards to work my speech because draggish (kind of like slurred just the words are clear but slow to leave the mouth) and I feel an increased tightness in my body. I’m scared and afraid. I can’t afford a drastic income change, but I don’t want to exasperate my condition which then harms my brain. Wow!!! What an introduction 😢 I am normally more upbeat I promise. I would love to connect with others and here and advice or feedback anyone has to offer. Thank you for reading and I look forward to connecting to others.
@Rel12

@thyasis_barber Welcome! :) I am sorry for what you have been going through and know that it is not easy. This is a new journey for many & you will find your way. I was diagnosed about two years ago, a month after my birthday with many emotions! (A MESS lol) I was so relieved because I had finally found an answer to all of my weird symptoms. With work it has been so tricky! I had to leave my last position because of the high stressful and fast paced environment - it made me relapse. You will have your days when you are down but keep a positive attitude and things will fall into place. At the end of the day your health comes first so you are taking the right steps. I wish you the best with everything!

@Erika_Galli

Diagnosed on the 26th September. Left leg and foot affected. I had 5 days worth of steroids and since have been on Gabapentin for the pain. Ive been housebound for over a month. I’ve not had the conversation about the DMDs yet, as I was told they want to wait until this relapse has got better, although there is a chance I could never be back to what I was. I’m in a high pressure, client facing, corporate sales job. I’ve been working from home since my diagnosis, I’ve not had any time off, which is probably to my detriment. But I completely understand where you’re coming from. I’ve worked hard to get to where I am and we wouldn’t even afford rent on what my boyfriend earns. I pay for most things, earning 5 times more. The thought of not having my income terrifies me. One thing I’ve started recently is neurophysiotherapy. I feel like I’ve got more movement in my foot than I did. I feel like it’s made me more positive. Hope I can get my movement back to ‘normal’.