In anticipation of our brand new Women & MS video series (launching later in the autumn. Watch. This. Space), we’re taking the needs of female MSers directly to healthcare professionals next month at ECTRIMS, Europe’s biggest MS conference.
We’ve already had an amazing response to two previous Wome...
What is the biggest unmet need for women with MS in 2023?
Episode 4 | Making the right decision for me | Effective communication with your MS team
Is having a clear, open dialogue with your healthcare team the holy grail of MS care?
Dom’s sage advice to other MSers is, “understanding what your personal goals are in life so you can ensure that any discus...
Hi everyone, I’m just looking for some advice regarding ocrevus infusions. I have received my first and second half dose of 300mg.. following the first half dose I felt very short of breath and had some chest pains when I went home.. which settled over a day or 2. I just received the second half do...
I need to have some Blood Samples taken before my next dose of Ocrevus on Nov 1st so, today a District Nurse visited me at home to take some blood and to change the bandages on my lower legs due to Ulcers and Blisters, or Cellulitus as it's known. When it came to taking the blood, it was completely ...
Making the right decision for me: Understanding your priorities
What does good look like for you? 🤔
Everyone has their own personal goals. In this episode, Claire, Roxy and Dom talk about what good looks like to them, and why sharing their ambitions with their MS teams has been vital to bring a u...
Way back when, in the days before the world changed. Before MS and COVID and all the bad things I've gone through in the last 4 years, I used to be quite active in the music scene as a photographer (not particularly good but I had fun and people supported me). I had friends whom I'd hang out with re...
I have been using intermittent self catheterization for three years. My doctor tells me next year I have to undergo cystoscopy as the isc puts me at a higher cancer risk. I’m so stressed to think about a higher cancer risk and having to undergo another scary procedure. Has anyone has cystoscopy? How...
Hi, am new to this so don't know what is going on with my body. I had numbness in my feet and legs for a few weeks till I was diagnosed with Ms end of August. I got put on gabapentin. Worked great for first couple of weeks but started getting numbness back in feet. I have RRMS.. Is this normal, has...