#n - Shift.ms

@stephramos

Newly diagnosed with RRMS. Any suggestions on what helps with extreme fatigue and brain fog? The steroids are helping with numbness in my feet but waiting for appt with specialists for treatment plan. Any advise is greatly appreciated

First posted on the Shift.ms app

@Padthai1

Last reply

Sunday and I’m just watching music videos and getting sky high ! Now and again it helps all the side effects of my ms unnoticeable 💯

First posted on the Shift.ms app

6

@Carpy64

Anyone on here who is on Ocrevus and has been told that their T cells are really high mine are and been tested for any cancer's which came back all clear ,they are now looking more into it. My T cells have been going up since starting Ocrevus

First posted on the Shift.ms app

@mollyb

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New to MS

Hello! I am 16 and just got diagnosed this past March. I'd been unkowingly showing symptoms of MS since late 2023/early 2024. I've been fighting and I've been in and out of the hospital for plasmapherisis and other tests/treatments. Last time I was discharged, which was April 4th, I was told that I...

First posted on the Shift.ms app

7

@RoseRivera1214

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What to do?? Hi, my name is Rose. I’m new to this app. I was diagnosed with Ms back in 2016. Since than I’ve tried two dmts. Gilenya and mavenclad since than. Gilenya gave me horrible rashes for four years before my neuro switched me to mavenclad. That medication was the absolute worst. I lost about half of my hair and had frequent heart palpitations to where I needed a heart monitor twice. I only did the first year round 1 and never followed up for my second because of fear. I am meeting with my neuro within the next month about starting a new medication. What is some options that he could give me? And what is your personal experience with those DMTS?

First posted on the Shift.ms app

3

@bcoon

EditedLast reply

I have relapsing remitting ms and was told I’d probably never be walking again….

But…. Guess what I’m walking and working!!! I’m a tow truck driver I work 5 days a week… 10 1/2 hours a day!!! I get fatigued every single day but vitamin b12 is amazing for me…

White Lake, United States

First posted on the Shift.ms app

2

@chericeV

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positive and negative

Ok.. .. ok… … this is going to sound weird…. But ….. anyone else notice symptoms get worse the more negativity your around….. surroundings… people… etc?? Then when you’re sounding yourself in positivity symptoms lessens…. Yes… this includes the people you love…… I did it…. I have chosen to surround...

Coos Bay, United States

First posted on the Shift.ms app

3

@littleMStish

EditedLast reply

Has anyone’s doctors tried to find the cause of their MS? I think it’s bazaar that nobody cares what caused this in me, in the first place. No family history.

First posted on the Shift.ms app

22

@cooksey32

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Hi all. I’m new to this app. I’m 26 years old and have been diagnosed since the age of 18. My MS nurse has said I have one of the most aggressive cases she’s ever seen, which doesn’t bother me personally, I live life as “it is what it is” what I’m wondering is does anyone have plans for future life when it gets worse? For me my plan is when I feel I can’t live a good quality of life I will happily just end my life. I hope it doesn’t get to that point but I am prepared for it. What’s everyone else’s plans? .

Middlesbrough, United Kingdom

First posted on the Shift.ms app

10

@NatureDeb

Last reply

trigem nightmare

you know when people say 'i'd rather die' than suffer that situation, well I genuinely would have pulled the trigger on myself to be out of the constant electrical shock pain in the face 😕

First posted on the Shift.ms app

5

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