Shift.ms

@amandalynn96

7 Aug 2025 23:29 EditedLast reply 12 Sep 2025 22:02

Has anyone been on Tecfidera? Is it any good? Any major side effects? How do you feel after taking? I’m all out of options thanks to insurance not wanting to pay for Ocrevus or Briumvi.

First posted on the Shift.ms app

38

@tashabird

12 Sep 2025 20:54

Hello all im Tasha Thompson 37 years old was diagnosed in 2016 with prms everything started in my mid-20s once I hit 30 everything started getting worse I now have all the medical treatment and everything I am incontinent I cannot walk no more stuck to either a wheelchair or a mobile chair I just would like to be able to to discuss this with other people like me

Bureau Junction, United States

First posted on the Shift.ms app

@Debbie79

7 Jan 2023 19:22Last reply 12 Sep 2025 18:39

Trigeminal neuralgia

Has anyone els had to deal with Trigeminal neuralgia (TN) due to their MS ?

40

@Jimmy369VT

12 Sep 2025 18:27Last reply 12 Sep 2025 18:32

Hey everyone, it has been a while since I have checked in with the group. I have still being tested and poked and prodded and my neurologist is still saying it is MS even though he has not found the signs he is looking for, but all of the other things he has been testing for has been coming up negative And he says that the only thing left is MS and I’ve been told by several people don’t expect them to find what they are looking for as quick as I want them to find it. It takes time and it just feels like I am their personal science experiment at this point, but they have put me on some prescriptions to See if they will help me and I have also been doing some apothecary treatment that seems to help my nerve pain a little better than everything. They have been giving me. I have been treating myself with apothecary and their prescriptions and it seems to take my pain level down to a level two cause on my good days I used to be a level four and on my bad days, the scale wouldn’t go high enough to measure my pain when I was having flareups, but both my primary care physician my neurologist, both said to never go back to work because I am considered a liability, a fall risk and I have seemed to agree with them about going back to work for the fact that I have to take frequent breaks to catch my breath or energy And a hour break turns into a two hour break for me just to make it through the day I have to take at least 15 to 20 small breaks the last job I had before my doctor told me to stop working. They let me go for the fact that I had to Take too many breaks and half of them were to use the bathroom to change my urinary products and I have learned if I push myself too much I will not be worth anything. The next day there are days where I hurt so bad I can barely get out of bed, but with the treatment that I have been doing, they have been getting less frequent and I have been able to manage to have more better days than bad days but when the bad days hit, they hit hard but overall, I am still doing pretty good and I haven’t felt Pretty good in a long time. I know I’m not going to ever be completely cured but with the management I have been doing it has seemed to help a lot more than just what the doctors have been wanting me to do the apothecary. I have been using turmeric a super B supplement And cayenne pepper and it seems to help the medication‘s. The doctors have me on work a little better my nerve pain and joint pain are not as bad anymore. When I wake up my feet do not hurt as long as they used to when I first hit the floor and I have been working on my diet and the foods I’ve been eating to see if that will help and I appreciate the group, it has really helped me find the support and guidance. I need to keep myself motivated to keep my treatments going.

First posted on the Shift.ms app

1

@Jimmy369VT

16 Jul 2025 16:23Last reply 12 Sep 2025 18:25

After reading some of the stories on here, and realizing, I am not the only one actually means a lot to find some people that understand what I am going through. I just don’t understand why the doctors neurologist are just using me as a test subject and treating me like a science project And some of the stories are similar to what I am still going through how does anybody else deal with their bladder issues? I have a family member that does self catheterization, but I’m not doing that, but it is kind of embarrassing when you do have an accident in the middle of Walmart I’ve been using briefs to prevent it from happening again.

First posted on the Shift.ms app

10

@treen

11 Sep 2025 17:29Last reply 12 Sep 2025 15:35

I was diagnosed with RRMS in 2015 and a few years later I was told I had SPMS I am not on medication for it

First posted on the Shift.ms app

29

@GodsGift94

12 Sep 2025 01:50 EditedLast reply 12 Sep 2025 13:11

Do you wear glasses? They say I need glasses and I've been to four different specialists and they tell me that glasses cannot help. I'm scared to even sit behind the drivers wheel. This is BS I'VE HAD 20/20 ASK MY LIFE

First posted on the Shift.ms app

12

@TracyD

17 Jul 2025 16:10Last reply 12 Sep 2025 11:52

I'm not sure how 6 years went by

It's been a long time since I posted here but I got a notification about getting fitter and since that's exactly what I'm doing right now I logged in for a read. After Lemtrada in 2015/16 I've been on Ocrevus for 5 years now, diagnosed for over a decade, I'm also 10 years no new activity on my MRI's...

Reading, UK

11

@JeffT

7 Sep 2025 22:30Last reply 12 Sep 2025 05:35