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I've been swimming down that river called denial. I was diagnosed in March. And not coping very well. Only my boss and a work bestie knows of my diagnosis. My family don't check in on me since they were told, my two friends i do have don't even ask about it anymore. My partner doesn't seem to a...

VERY INTERESTING FACTS ! ! Dead Penguins - I never knew this! Did you ever wonder why there are no dead penguins on the ice in Antarctica ? Where do they go? Wonder no more ! ! ! It is a known fact that the penguin is a very ritualistic bird which lives an extremely ordered and complex life. Th...

I like to think I'm optimistic over all but sometimes late at night the reality hits in a big wave. I hit mid-life and I went south hard. I lost my job, home, family and self respect in the melais that turned out to be MS I was told 13 years ago when I had optic neuritis that I did not have MS by h...

Hey MS family I'm 8 days into hospital admission, 20 days in to this relapse in total. My EDSS score over this time has fallen from 4.0 to 7.0 I am effectively wheelchair bound and cannot stand for more than 20 seconds, let alone walk due to weakness and myclonus. My MRI's are stable showing no s...

Hey MS family I'm still hospitalised with this relapse, I've had 5 days if methyl-pred IV. I'm still getting myoclonic jerks that are in my legs, hands, torso and head. Triggered my movement or intention movement. I've been prescribed Keppra and whilst they're less violent they're still pretty co...

Hello, Ever since my diagnosis and my symptoms/general health getting worse I have been having panic attacks. When i talk about my symptoms to friends/family or when my symptoms get very overwhelming I seem to go into a full blown panic attack and it’s really upsetting. Has anyone else experienc...

Sorry for the vent post but I really wanted to get something off my chest. For a long time I struggled to find a stable job and was stuck working irregular hours in fast food restaurants and cafés. My financial situation was quite bad. I was estranged from family and I was looking into food banks a...

Hi everyone x How do you handle not feeling supported mentally, emotionally or physically? I live on the other side of the Atlantic from my family. They don’t visit. I’ve made peace with it. If they ever say it I’m like whatever. My mother never really took my MS stuff seriously. But she met a...

I was at hospital last week seeing a lady called Ashleigh who is a student from Edinburgh currently based out of Clinical Neuropsychology in Dundee who is currently performing a survey on people with multiple sclerosis who have had suicidal thoughts. So I was taking part in the process. It’s importa...

I've just had my first tysabri infusion today, but I'm a little foggy on the finer details. Am I now immunocompromised? Like, am I more at risk of catching COVID/flu/general colds etc? I know about the bladder infection and such risks, but I just wondered more generally if I'm more at risk of catchi...