Fatigue
I was wondering if anyone has any tips on how to explain fatigue to family or loved ones. To me, the kind of fatigue I experience is different than "normal fatigue" the responses I get from those that are close to me is, "yes, I am tired and in pain too" or "you are just getting okder" or " you seem a bit lazy "
I feel very dismissed or even that they are being condescending. Very frustrating. I have gotten to where I don't even share how I am really feeling just to avoid the responses I get.
What is your opinion on the best or most effective way to verbalize these feelings of fatigue, pain, etc. To others?
Thank you.
@Joeytx361 Good morning. It's a tricky one to explain MS fatigue because it's unimaginable to most people. I think the best way is to educate, but then there needs to be that desire to be educated. I find it helpful to copy small amounts of information about symptoms to family members over WhatsApp, or link them to things to read, small exerpts are easier to absorb than a big fact sheet. Strike 'whilst the iron is hot' so if you've just had a conversation about fatigue, send the info then. Hope that helps.
Read to them what you just wrote