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Hello everyone! I hope everyone is enjoying our shiny new app, we know we've been loving it. I just wanted to write a little post about keeping safe and happy on here. As with all online platforms, sometimes there can be a small proportion of people that come on with not-so-nice intentions. We wan...

Hi! I’m an MSer from the US and am new to the platform! If you’re willing to share, I’m curious what weird symptoms that you have and if your neurologist acknowledges it as a symptom. My neurologist tends to write off any symptoms that I bring up. But the more I look into MS communities, I find a lo...

We look forward to your post on the topic For all of you interested: watch out for news of TOLEBRUTINIB and FENEBRUTINIB, for us progressive MSers, in the upcoming Euopean Congress of MS in Copenhagen, Denmark (ECTRIMS). Currently in phase III (the last before filing to EMA or FDA), the drugs coul...

Hello my fellow MSers I have RRMS and one of the permanent issues I have are bladder and bowel control. I've returned to work after a relapse (triggered by work-related stress) and have asked if I could have the ability to reserve a desk near the bathroom (we book desks) as part of my OH workplace...

Hi everyone. Hope you’re all doing ok. I’m having a meltdown today. 2 people have told me I’m getting worse. Am I expecting too much? Here’s what happened: On Wednesday had to attend a hospital app with my other half (he really wanted me to go with him as I tried to get out of it). We live in York, ...

.....holiday abroad, air con, Viagra, the app, being an MSZ. Quit nicotine at the start of the summer holidays, did wonder about the timing but i've been nicotine free since 7th of july, and caffeine free since 12th october. quit stinkies in 2015, now the vape has gone too. Two things I thought wo...

I visited an outdoor attraction last week and had to walk around a fair bit. I'd say I don't yet "need" a cane, but it would likely have made a massive difference to how tired I was afterwards, so I decided to take the plunge. I just received my first cane and having tested it around the house I lo...

Hello all, I’m on my second bout of Covid but the first one whilst diagnosed with RRMS. I got Paxlovid prescribed on Day 1 and have been in bed for 3 days as I find the best thing for me to do is as little as possible when I don’t feel well. The Covid nurse (North Lancashire/South Cumbria) told me ...