Join to explore more

Shift.ms is better if you're logged in

Join the communityOr find out more

By signing in to Shift.ms you agree to our terms of use and privacy policy.

Already have an account?

Sign in

Shift.ms
Donate
Learn about MS
MS symptoms
MS symptomsA guide to MS symptomsWhat are the early signs of MS?Understanding visible and invisible symptoms of MSMS HugMS and optic neuritis
MS diagnosis
MS diagnosisBeing diagnosed with MSWhat is MS?Different types of MSIs MS hereditary?Late onset MS and treatment
MS treatment
MS treatmentGetting treatment for MSCoping with MS fatigueExercising with MSUnderstanding MS relapseHSCT treatment for MS
Living with MS
Living with MSAfter diagnosis: living with MSMultiple sclerosis and mental healthWorking with MSMS, sex and relationshipsA guide to MS benefits in the UK
  • Forum
  • Learn about MS
  • MS symptoms
  • MS diagnosis
  • MS treatment
  • Living with MS
  • Find MSers
  • Buddy Network
  • Films
  • MS Latest
  • Get Involved
  • Volunteer
  • Fundraise
  • Donate
  • About us
  • Contact us
  • House rules
  • Terms of use
  • Privacy policy
  • Cookie policy
Sign in

We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2025 Shift.ms

  • Picked for you
  • Browse topics
  • Find MSers

Topics

  • Diagnosis
  • Symptoms
  • Newly diagnosed
  • Healthy living
  • Research
  • Disclosure
  • MRI
  • Browse all
Sort 7409 results by
Recent activityNewest posts

@kyrgyzkiwi 

20 Jul 2025 05:47Last reply 20 Jul 2025 06:55

kyrgyzkiwi

Anyone getting the MS hug?

I’ve heard folk talk about this and am not 100% sure what it is. I have a continuous tightness around my waist, its only relived by lying down. Is this the MS hug?
First posted on the Shift.ms app
1

@Jpetridish 

20 Jul 2025 02:33 EditedLast reply 20 Jul 2025 03:53

Jpetridish

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

First posted on the Shift.ms app
3

@TracyD 

17 Jul 2025 16:10Last reply 18 Jul 2025 12:44

TracyD

I'm not sure how 6 years went by

It's been a long time since I posted here but I got a notification about getting fitter and since that's exactly what I'm doing right now I logged in for a read. After Lemtrada in 2015/16 I've been on Ocrevus for 5 years now, diagnosed for over a decade, I'm also 10 years no new activity on my MRI's...
Reading, UK
5
Unpublished

@MayaCardwell 

17 Jul 2025 00:55

MayaCardwell

Blast Away Your Boredom: How Block Blast Takes Match-3 to a New Level

Website: https://block-blast.online/ In the ever-expanding universe of online puzzle games, finding one that truly stands out can feel like searching for a needle in a digital haystack. Yet occasionally, a gem emerges that manages to polish a familiar concept to a brilliant shine. Block Blast is pr...
New York, United States

@Fozz 

16 Jul 2025 23:10Last reply 18 Jul 2025 00:44

Fozz

Unlucky? I need a rant.

So, I got got medically discharged from the army for a spinal injury 2 years ago which still causes me pain daily... I then got diagnosed with MS... Obviously caused depression... Optic neuritis kicked in and now have permanent damage to my right eye. And I get a phone call this morning from the der...
Leicester, United Kingdom
10

@culver 

16 Jul 2025 21:03Last reply 16 Jul 2025 21:06

culver

Knee surgery

Right now, I’m debating to get knee replacement. My knee problems Were before I was diagnosed with MS I’m just worried should I get the replacement? I’m currently having trouble walking standing bending and sometimes getting off the floor for looking under the bed for my shoes. Has anyone had knee ...
First posted on the Shift.ms app
1

@Jimmy369VT 

16 Jul 2025 15:55

Jimmy369VT

Hello everybody, I am Jimmy. I just found this group and a little bit about me. Both biological parents were diagnosed with MS mom in her 20s. My dad and his 40s I have learned to watch for signs and symptoms, but I put them off thinking it can’t be happening to me it skips a generation And then I found out my dad‘s little sister was diagnosed and a cousin that is only two years older than me was diagnosed and I decided my wife being a nurse I might as well not put it off anymore because my body was getting worse. I have lost Feeling in both my feet. My limbs go numb for no reason I cannot stand or sit for long periods of time my bladder does not function the way it should. My balance isn’t the greatest anymore. I am pretty much going through all the same problems. My parents went through And I know I should listen to the neurologist and do everything but it just feels like he already knows he just wants to make sure that it isn’t a disease that mimics MS I know I just have to be patient and do everything but my body is in so much pain sometimes and I can’t sleep But then when I am able to walk around, we have sand spurs here in Florida. I can walk across my yard and my dog can feel them more than I can when they get stuck to the bottom of our feet and when I tell doctors and neurologist that both of my parents Suffered MS, their eyes light up like I’m assigning it to experiment and tell me that it is rare to hear that the neurologist I have studies MS and he says this was the first time he has ever heard of both biological parents having MS. He even showed me studies And it’s either a grandma or a grandpa Paw or a mom or a dad and then I was told I have a 12 to 15% more likely chance of having MS at first I was frustrated and then I was just depressed and then I realized if my parents could deal with it for so long and keep their positive attitude even though their bodies were breaking down And rejecting the things they wanted to do. I have decided that I will listen to the doctors but with everything else going on with me some of the medicines for it I can’t even take because of heart condition conditions or colitis. I appreciate being accepted to the group and I just wish there was something like this for my parents back in the 80s and 90s

First posted on the Shift.ms app

@Lizziesouth74 

16 Jul 2025 10:18Last reply 17 Jul 2025 10:14

Lizziesouth74

Pain question????

Hi all, so been diagnosed 5yrs now but know my MS started 27 years ago after having my son. He was born by c-section and had many problems after but all was put down to pregnancy and no brain scans or any mention of MS. Since then I have suffered with chronic sciatica(so they say). I then had my dau...
First posted on the Shift.ms app
5

@katf 

16 Jul 2025 06:01Last reply 17 Jul 2025 10:09

katf

Mental health

Anyone else stuff with mental health problems? I'm in crisis at the minute so all over place. Sleeping all day and up all night. I've had problems before when I was sectioned.
First posted on the Shift.ms app
5

@Failuretolaunch 

15 Jul 2025 22:28Last reply 16 Jul 2025 00:28

Failuretolaunch

So it appears....

That no one is interested in meaningful connections.....might as well just stick to ☺️📖, 🤔🤷🤷😵‍💫
First posted on the Shift.ms app
5
PreviousNext page