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My Neurologist isn't the best, hasn't even called me back for an appointment to see him regarding the diagnosis. Saw some posts referring to medication, don't know anything about this. Any advice would be grateful.

Hi! Just thought I'd check in to update on my life in general, and ask a few wee things... So I had a super stressful year from 2020-21. I was doing teacher training and kept hitting barriers where I felt so undafe and at risk from COVID whilst on placements. It was looking like all would be OK, bu...

I have RRMS

To begin, I had a craniotomy in 2014 to remove a benign brain tumor from the left frontal lobe that was causing vision loss, the worst migraines I’ve ever had, and many other issues. Since 2020, I’ve noticed random nerve pain in other places on my body outside of my head. Random hot spots that feel ...

To begin, I had a craniotomy in 2014 to remove a benign brain tumor from the left frontal lobe that was causing vision loss, the worst migraines I’ve ever had, and many other issues. Since 2020, I’ve noticed random nerve pain in other places on my body outside of my head. Random hot spots that feel ...

I was diagnosed with ms when I was 17, I am now 26. Does the constant tiredness or aching ever go away? And those of you who have been on techfidera, has it helped tremendously or have you found yourself going for something new? It makes me feel like my skin is on fire. I’m tempted to go back to the...

I've been getting a sharp stabbing pain behind my right ear and general headaches for the past week... Doctors say it's tension headaches linked to stress.. google says it's Occipital neuralgia.. anyone experienced this? I'm going to leave it a few more days and then contact my ms team.

Hi there! I'd like to ask those MSers, diagnosed before Covid, how did you manage fears of viral infections? My partner is even more worried than I am about going to places without a mask. How did you cope before when you had sneezing people around you? What about, post-covid? How are you handling i...

Just spent over a week in the hospital with an exacerbation/relapse with my MS. After7,000mg of steroids and getting my pain under control. I finally got to go home. I haven’t been home almost 2’weeks and have yet to be able to leave my house. Since my hospitalization I have been very easily oversti...

In this episode of MSers React Dave, Roxy, Katt and Heather respond to posts on Shift.ms about loneliness. Have you experienced loneliness because of your MS? If so you’re not alone! If you have an experience to share, or a way that you’ve learnt to adapt then please share your story in the comment...

In this film six MSers talk about coming to terms with their MS and issues raised in our Shift.ms 'Belong'. What good out of bad have you found since your diagnosis? Share your experiences in the comment section below 👇 https://www.youtube.com/watch?v=Dk3ZwDFwR0A

I've had MS according to my neurologist for 29 years based off my MRIs but I was diagnosed 13 years ago. Did anybody else have MS way before you were diagnosed? I was such a sickly pre teen that could not keep up with my peers so when the doctor told me that news it all made sense to me.

Hello! I was wondering if anyone had any advice regarding the washout period for Ocrevus? Before trying for a baby. Has anyone had any experience of getting pregnant after Ocrevus? And how long did you wait before ending treatment and trying? The advice I was given originally was 12 months and have ...

This is the best fresh juice every morning for brain, i suggest everyone to try

I was diagnosed with TM (transverse myelitis, MS’s rarer cousin) in 2020, have had a couple of flare ups since then and am currently experiencing what I think is a relapse because I’ve a bunch of new symptoms. Until recently my only persistent symptom was tingling in my left leg, following extreme s...

I literally been hiding in my house for years. I rarely get out. I’m a recluse. I’m a shut-in as my neighbor put it. But I am so sad and so lonely. I was meant to entertain. I was meant to be an actor 🎭. I’m serious. I was dealt a terrible hand in this game called life. I totally missed out. Missed...

Hi it's nearly a year since I got optic neuritis thought I had bad floaters! My sight still not great all my scans were negative then 3 months later got mail from neurology to say they found something in my lumbar results since then I Have started getting pins needles numbness heaviness all in left...

Advice from María Sabina, Mexican healer and poet - “Heal yourself with the light of the sun and the rays of the moon. With the sound of the river and the waterfall. With the swaying of the sea and the fluttering of birds. Heal yourself with mint, neem, and eucalyptus. Sweeten with lavender, ro...

Hi I have been experiencing electrical pain long my jaw, which I think might be Trigeminal neuralgia but perhaps caused by MS? It has arrived as a new symptom since the sudden loss of my husband last week. A. Wanted to know if anybody else had this and had any good solutions for dealing with it. ...