#be - Shift.ms

@nelly182

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Good morning. Question how often does everyone see their neurologist?? Officially for me it’s been twice a year.

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65

@St1gzy

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🐝 Right, I’m going to kick the fucking beehive with this one…

MS, meat, dairy and restrictive diets. What’s your 10p? I’ve been thinking about how many of us get diagnosed with MS and suddenly food starts disappearing from the menu. Meat goes. Dairy goes. Gluten gets escorted from the building. 😂 There is some interesting MS data around this. One Australian...

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96

@Ritz

Edited

May 2021: First episode of optic neuritis, diagnosed as Clinically Isolated Syndrome (CIS).May 2026: Second episode of optic neuritis, leading to a diagnosis of Relapsing-Remitting Multiple Sclerosis (RRMS).April 2026: Changed jobs, experiencing increased stress and long working hours.August 2026: Started Ocrelizumab (Ocrevus) DMT via injection.Current symptoms: Increased neuropathic pain and stiffness, along with a feeling of slight heaviness in my right arm.My concerns: Could these symptoms be related to MS activity, stress, or the effects of Ocrelizumab? How long does Ocrelizumab take to become effective, and should I be concerned about the worsening neuropathic pain and right-arm heaviness?

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@PECULIARE

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Why people don't did to know each other better before jumping into relationship

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1

@HotMiSS

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No DMT has worked for me… I have tried Tecfidera, Ocrevus, Kesimpta and Tyruko but I just keep getting worse!! What do people think of Mabenclad?? Or should I just stay on Tyruko or stop DMT’s altogether?? My walking is so bad now!! I want to cry!! But before that, I want to find something that works!! 🤷‍♀️🤷‍♀️

First posted on the Shift.ms app

10

@Teddy123456

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Hi I have only just been diagnosed with secondary progressive ms and wanted to know how you all get on with pain and problems with walking as my legs are alway so stiff ?

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7

@Chrissy91

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Hello! I am being referred for a cognitive assessment. Just wondering if anyone has had that done. Also, what happens if you fail? I'm not really sure what to expect. Thanks

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26

@Randyadams

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I feel down because of dead leg syndrome in my left leg went dead on me feel on my left hip and left wrist. Nothing broke thank God. My caregiver was home. He got me off the floor. I had a rough day. Nurse is over doing a med list.

Jurupa Valley, United States

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4

@PriyaC

Any better on mavenclad ??

Just wondering if those on mavenclad feel that their symptoms are any better rather than no worse?? Do symptoms like fatigue, brain fog and limb weakness/mobility or dizziness get any better or just no worse?? And if any improvement, how long after starting?

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@Jpooh

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Does anyone else experience pain and throbbing in legs at night? It's only at night when I'm lying down and/ or ready for bed. It's different from my aches and pains and stiffness during the day. Was diagnosed in mid November so I'm still trying to navigate my way through all this nonsense 🙃😉🧠🫘( I call my lesions brain beans 🤷‍♀️😂)

First posted on the Shift.ms app

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