#be - Shift.ms

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We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2025 Shift.ms

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Smoking or edibles thc or cbd what works best ? How do you handle it while on or taking dmt’s?

Hampton, United States

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Need to show activity before offered meds for Primary Progressive MS

I have had my diagnosis changed from RRMS to PPMS but my latest scan in April shows it is currently not active, therefore, can not start medication yet. I have lesions showing on my brain, neck and chest but I was unaware I had MS until a year ago so I’m concerned that when the MS becomes active, I ...

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So I finally went to a neurologist and he didn’t give me options. He automatically told me he was going to give me OCREVUS infusions. I have never had any other treatment besides steroids for a flare. What do I do? I have insurance but it’s not going to cover very much or the medication and / administration of the infusion. I don’t want to be in complete debt for this disease !!!

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All of us ms'ers getting to know each other better:

Hello, I have a question here for anyone that reads it and is willing to answer, to get to know all of us better. Where are you from originally? I was born in Michigan and lived in New York for a large portion of my life. I went to high school in Virginia Beach and went to undergraduate in New York...

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Doing better mentally:) had to find myself.

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I was trying to find someone to talk to,to educate myself on retinol diet. To try and find some recipes or the different foods , I can prepare my dad. Because recently his kidneys have been bad and so they put him on the retinol diet? I'm not sure if this is the right place to look or not , but if anybody could help me your appointment direction , I'd appreciate it.

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I have RRMS with bowel, bladder, pelvic floor issues. Just a couple of weeks ago, I was at the ER 3 times in 2 days because I had gone a week without having a BM. They did an xray checking for a bowel obstruction. There was no obstruction but it did show major back up. They did an enema (sorry! It was very degrading) with little results. I went back that night because I was worse and looked like I was pregnant. They did a ct scan and it showed the Sam as the xray. Another enema with no results. The next day I was even worse so I went back. I was basically told that there was nothing they could do and it was considered medically necessary to admit. I was given a Linzess pill and a cup full of oily medicine and sent home. Later that night I did go, but not much. Now, it’s been 9 days. I’ve hardly eaten anything since I don’t have an appetite. I’ve drank prune juice, hot Apple juice…. Nothing works. I have been in communication with my GI doctor which is who found that I had MS after losing complete bowel control at 49. He is on Christmas break but I plan to see the NP hopefully Monday. Does anyone have any suggestions or can anyone relate?

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Has anyone here been able to maintain a full time job 20 years after ms diagnosis ?

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Hello Merry Christmas I have a question does anyone have accidents at night with being incontinence issues?!

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Merry Christmas everyone! It's been a very lonely day. Im sad & depressed

First posted on the Shift.ms app