#be - Shift.ms

@Choyia

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Is the heat getting harder to handle for some of you. Every year it seems like the heat hits me harder than before.

First posted on the Shift.ms app

13

@Mondaygirl22

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How safe is it to get those steroid infusions close together like how far should the gap be between them?

First posted on the Shift.ms app

8

@paddymac999

EditedLast reply

Hi guys, i am new on this. I've been taking fampyra for two weeks now. At first I seen sme positive effects,but for the last coupleof days my mobilityis not great. Im wondering how long does it take for it to really work. I've got a months experimental course. Will I have to take the whole four week course before I find out for sure

First posted on the Shift.ms app

5

@BriPetri

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Who had mononucleosis(mono)? I caught it when I was 12 or 13. Read an article that it could be related.

First posted on the Shift.ms app

14

@SacralSaela

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Really disappointed with this platform and it’s been one day

I am so disheartened by the interactions I’ve had on this app, in leas than 24 hrs. So far it has been a slew of judgment and mansplaining about MS. Like most things in life, I don’t really care how other people approach their health, as long as I’m not being pressured to go along with it. My orig...

First posted on the Shift.ms app

42

@Biteme71

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Ramification of torticollis nonsense and what happens when you have side effects with botox . After my latest round of Botox that I have every 3 months to deal with the torticollis new nonsense I now am choking every time I try to swallow something or God forbid eat something. This is not the diet plan I was looking for 🤦 I called the MS center for some advice on swallowing or rather navigating the new nonsense and then cold a different neurologist to try to get a second opinion. Of course I can't be seen until freaking August. No I don't want to go to the emergency room it's not an emergency simply going to the emergency room cost more money than my God damn mortgage. Luckily if I eat small bites of tiny things I'm able to choke down some food and cream of wheat works but damn it not cool. On the other hand my husband made a really cool attachment to a scooter we have so that we can hook my Walker onto it so that when we go on vacation I can take the walker with me at the beach when we drive around. It's the little things I'm such a lucky woman to have such a fabulous husband 🤩 and yes attitude is everything do what you can how you can when you can and everything else can f*** off 🤣

First posted on the Shift.ms app

3

@christypogue

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Im looking for advice? I will be 57 this month and I met with neurology nurse practitioner today. I have spinal stuff going on that could explain my numbness in my arms and the tingling but what led me to them is my frequent falling. I've fallen 3 times in 8 months. Once in the shower. Second time at a childcare center because I work with behavioral children and I fell broke my wrist and I thought I did something to my neck, bit through my lip. Then several weeks ago I just face planted in the garage and broke my nose. The mri did show lesions but I'm pretty old to be diagnosed. Im not sure I want to be diagnosed at this age? Should I even pursue it? Im so confused? Im not one to stick my head in the ground but I also don't want to sit around and get worse. I have other symptoms and I've fallen many times before here and there and just chalked it up to me being clumsy. I could use some advice?

First posted on the Shift.ms app

14

@MarcBerg828

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Is there anywhere to find out how Long a person had MS before the diagnosis?

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6

@Croft239

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How long can you be on Kesimpta for?

I had a telephone appt with my neurologist today. I’m sure he said I could stay on Kesimpta for 6 years all being well but he is very difficult to understand on the phone. Does anyone know this for sure ? Thanks

First posted on the Shift.ms app

5

@jbeer427

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Pain/Stiffness in neck and pain behind ear?

I was diagnosed in March of 2025 and recently started kesimpta. Have had symptoms since 2021 but was misdiagnosed. My most recent symptom are intense muscle spasms in my neck especially at night. Following a terrible dizzy/vertigo spell that had me walking with a cane, I’m have constant pain behind ...

First posted on the Shift.ms app

1

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