Really disappointed with this platform and it’s been one day
I am so disheartened by the interactions I’ve had on this app, in leas than 24 hrs. So far it has been a slew of judgment and mansplaining about MS. Like most things in life, I don’t really care how other people approach their health, as long as I’m not being pressured to go along with it.
My original post simply stated that I am currently taking my diagnosis from a holistic approach and asked if anyone else was doing the same. It wasn’t meant to be a platform for comments about Wahls being a grifter and her protocol taking advantage of the “desperately newly diagnosed.” I am not desperate. I am well read, well researched and choose not to take what my neurologist says as dogma. If I wanted “advice” or to have DMTs shoved down my throat I would ask, or talk to my 70 year old white cis het male neurologist who doesn’t care what I think.
I thought this was supposed to be space of uplifting support? Yet people with “friendly” in their names want to talk smack on other peoples posts. This does not feel like a safe space. I guess at the end of the day this is still the internet. I guess even trolls can have MS…
Comment deleted.
Yesterday I saw the post on Holistic Route when it was new but decided not to contribute as I didn't understand what Holistic meant. I googled it but was still none the wiser. I can be dim in this respect because I have MS. Others may not fully understand the term neither yet several members went to the effort of making a contribution (have just read through it). I thought all comments were sound. I get what I pay for. This app is populated by opinions and experiences of the members. If all posts were answered by Consultant Neurologists then I doubt use of the app would be free. So thank you to all who contributed. ☺️