Really disappointed with this platform and it’s been one day
I am so disheartened by the interactions I’ve had on this app, in leas than 24 hrs. So far it has been a slew of judgment and mansplaining about MS. Like most things in life, I don’t really care how other people approach their health, as long as I’m not being pressured to go along with it.
My original post simply stated that I am currently taking my diagnosis from a holistic approach and asked if anyone else was doing the same. It wasn’t meant to be a platform for comments about Wahls being a grifter and her protocol taking advantage of the “desperately newly diagnosed.” I am not desperate. I am well read, well researched and choose not to take what my neurologist says as dogma. If I wanted “advice” or to have DMTs shoved down my throat I would ask, or talk to my 70 year old white cis het male neurologist who doesn’t care what I think.
I thought this was supposed to be space of uplifting support? Yet people with “friendly” in their names want to talk smack on other peoples posts. This does not feel like a safe space. I guess at the end of the day this is still the internet. I guess even trolls can have MS…
I’m sorry to hear this has been your experience. I haven’t read through your thread past your first message but I recognise what you describe from other MS forums. I’ve made some friends here and got a lot of good advice but most MS spaces I’ve been part of skew towards the latest allopathic approach to treatment I’m somewhere in the middle of the road do please let me know if you find somewhere more holistic focused as I’d like to join both communities!! Hugs
Yesterday I saw the post on Holistic Route when it was new but decided not to contribute as I didn't understand what Holistic meant. I googled it but was still none the wiser. I can be dim in this respect because I have MS. Others may not fully understand the term neither yet several members went to the effort of making a contribution (have just read through it). I thought all comments were sound. I get what I pay for. This app is populated by opinions and experiences of the members. If all posts were answered by Consultant Neurologists then I doubt use of the app would be free. So thank you to all who contributed. ☺️