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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@JenniDawn 

Last reply

JenniDawn

Hey everyone. I am new here. I was just diagnosed with MS after they found three lesions in my MRIs—one in my brain stem last April and two more on my brain about two months ago. Following a lumbar puncture two weeks ago, my neurologist confirmed the diagnosis.I have my first appointment with a neuroimmunologist MS specialist this coming Friday. I’m trying to put together a list of questions, but honestly, I’m an emotional mess and feeling very overwhelmed. I have a small list started, but I would love some suggestions on what I should prioritize asking as I start this journey. Please and thank you!😊

First posted on the Shift.ms app
23

@Christie 

Last reply

Christie

Was anyone diagnosed with other conditions befor your ms diagnosis?

First posted on the Shift.ms app
18

@cass333 

cass333

Just have a question. Im in the stage of waiting for a diagnosis...which is extremely hard with the unknown. Their calling it TM, I have a one thoracic spine lesion and positive for o bands. Has this happened to anyone else early in their diagnosis and if so did it turn into MS and how long did it take?

First posted on the Shift.ms app

@shiftms-films 

EditedLast reply

shiftms-films

Do All MSers Think The Same? | Diagnosis: Part One

Join Roxy, Heather, Maytee, Katt and Dave as they agree and disagree with hot MS topics, opinions and share their multiple sclerosis diagnosis stories. Did you have a difficult diagnosis? Why not share the lessons you learned with the Community in the comments below 👇 https://www.youtube.com/watc...
  • Diagnosis
  • Work and play
27

@shiftms-polls 

Last reply

shiftms-polls

Poll 📊 Did your HCP mention progression at diagnosis?

Last month we reached out with an opinion check and asked you if healthcare professionals should discuss progression at diagnosis. While 17% of you said you’d prefer to be told later on, around 75% said yes, you would prefer to be told about progression at diagnosis. In the second of our progressi...

Are HCPs talking about progression at diagnosis?

Total answers: 185

  • Diagnosis
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43

@s_h_a_y 

Last reply

s_h_a_y

How does the diagnosis process work from here?

I'm M 45 in the UK. My GP originally sent me for an MRI of my spine because of ongoing back issues; we all assumed it was a trapped nerve or a bulging disc. However, after the consultant radiologist reviewed the scans, I was referred to a Neurologist due to "areas of concern." At my NHS neurology ...
First posted on the Shift.ms app
5

@kellihr 

Last reply

kellihr

I had a spinal tap yesterday and besides feeling like I was beat with a sledgehammer on my back my head has never hurt this bad in my life. Did anyone else experience this? My dr did just to confirm her diagnosis.

First posted on the Shift.ms app
26

@Geniusmind 

Last reply

Geniusmind

Hey 👋 In research have there been any trials that showed improvement towards M.S. diagnosis.

Jackson, United States
First posted on the Shift.ms app
2

@JmeKnight 

Last reply

JmeKnight

Delayed Diagnosis (Legal)

I am new to this community, and I'm grateful for it, and so I hope this question is ok to ask: I was recently incarcerated, and without a diagnosis of MS, I gave prison medical staff plenty of information to lead to the diagnosis. I know this because since my release, my Provider has very quickly br...
First posted on the Shift.ms app
11

@sam47 

sam47

How can I help my partner through my diagnosis?

I (24) was diagnosed with MS January 8th after waking up with facial paralysis and vision loss. I have a boyfriend (26) who has been my rock through all this change. He has taken over everything so I can focus on my health and my mental well being. I cannot express enough how much I appreciate and l...
First posted on the Shift.ms app
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