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Hi, I was diagnosed officially in June but investigations began last summer when I was off sick from work for 6 weeks. My teenage kids know about some of my symptoms but I have always downplayed how much they effect me to protect them from worrying. I haven’t told family or friends about my diagnosi...

Last month we reached out with an opinion check and asked you if healthcare professionals should discuss progression at diagnosis. While 17% of you said you’d prefer to be told later on, around 75% said yes, you would prefer to be told about progression at diagnosis. In the second of our progressi...

I was hospitalised back in July as I lost the ability to walk due to servere pain in both my knees. Nobody believed my pain as there was no swelling of bruising and my symptoms were 'weird'. It wasn't until I was in the MRI I realised the nurses voice change tone and I knew they had found something...

So almost 10 yrs ago I was diagnosed with bells palsy but after going to my primary they informed me that it was ms what am I to do this was almost 10 yrs ago of not knowing I had ms

Today marks one year from my diagnosis. I have a lot of mixed feelings and definitely emotional. I have since only disclosed to a handful of coworkers my best friend and my immediate family. I have wanted to shout it to the world but at the same time I don’t feel ready. I have had 2 infusions and fe...

How old Where are you when you were diagnosed me 12

I’m starting kesemta but have to get blood test and my singles Covid booster phenomia and flue booster has every one got tk have it done?

The first thing that happened was my daughter was diagnosed with MS. No one else however that I know of in my family had this diagnosis. She was almost 2O then.Three years later when I was 50+ I had transfer Myelitis.It left me rather numb from my chest to my feet. Within a week or two most of ...