Shortly after diagnosis and Facebook
Did anyone else get diagnosed and join the Facebook page Multiple Sclerosis resources? That page gave me so much anxiety and even had me 😔 I deleted that page and now I dont see all the negative post or misinformation and I think my anxiety has dropped to a normal level. My point is , sometimes alot of the fear and mood changes can come from what we're allowing us to mentally consume. This is hard enough already.
I had the same reaction. It made me realize that every MS patient has different symptoms. So many had debilitating pain, of which I have none. It’s actually the opposite. I can have a muscle cramp and know it’s there but not hurt much. I left the group there was too much sadness. Hard to stay positive reading that group’s posts.
I'm so glad someone else has mentioned this, and about the exact same page too. The anxiety it caused me was insane. I was newly diagnosed, doom-scrolling for answers, and somehow convinced myself I'd be in a wheelchair by next Tuesday. 😅 Looking back, I think I was mentally consuming the worst-case scenarios 24/7. Once I stepped away from those groups and focused on my own journey, my anxiety dropped massively. MS is hard enough without borrowing everyone else's fears as well. The irony is I'm now 80+ months into RRMS, on treatment, working full-time, raising 3 kids, training at the gym and still causing chaos. The internet had me thinking my future was already written, but thankfully real life turned out a lot different