@gemma81 

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gemma81

Feeling so low (help)

Hi everyone, my name is Gemma. It's been months and months since I've been on here so please be with me while I have a moan. I was diagnosed with MS back in 2014 and since then I've had 4major relapses, 2while taking tecfidera in the last 10months! In the last 6mths or so it's finally hit home that I have MS and that it's had a impact on my life. Not saying I can't do anything but I certainly have to think about my day and plan. I've always been so independent and due to being a stubborn cow I still won't ask for help so then I struggle more! I have 2children 4&9 and two stepchildren. I was on tablets to help with nerve pain but they weren't helping so switched me to pregablin, after being on them for 6wks my Dr took me off them as my depression to me was worse and I was struggling with my bowel movements and I already suffer with IBS! Anyways I'm struggling to talk to anyone because they don't understand and just say I'm being stupid, drs won't give me anything, they said I've got to go on a stress management course! I also have anxiety issues and won't go anywhere New on my own or travel far. I'm also having another face to face medical nxt wk and I'm crapping myself coz I don't want them judging me on that day if I'm feeling OK. Please help as no one close to me understands :)
@Mehdi

Hey Gemma.. I hope you're not feeling too crappy.. I'm sorry to hear you're struggling to come to terms and adapt with your life-changing diagnosis.. It doesn't have to be an impediment.. If you take a minute out to sort out what you can/can't do in accordance to your low levels of energy, maybe you can allocate your energy more efficiently.. And dont feel bad about asking for help or saying you can't do something, it's OK. Not everyone will understand or see it from your point of view, but you've got to draw the line somewhere, for others more than yourself.. I wish you the very best and hope your children blossom before your eyes with no worry in the world :)

@Stumbler

Hi @gemma81, it does sound like you've now realised that your MS is here and now and it's something that you're going to have to deal with. This is all part of the journey that we've all undertaken to try and reach our acceptance of the fact that we have MS. You now need to stop beating yourself up about it and just acknowledge that the MS is something that you need to work with, so you can manage it. Are you in contact with your MS Nurse? The reason I ask is that your MS Nurse is the best person to try and understand what you're going through. They can give your GP guidance in the medications that they should consider for your nerve pain and your depression. We all need to manage the stress and anxiety that can come with MS. These negative emotions do not help and actually release chemicals in the brain, which can negatively affect our Central Nervous System (CNS). In this respect, look upon a Stress Management course as supplying you with some tools to help manage your MS. You sure have your work cut out for you with your children, so try and go easy on yourself. The calmer you can feel in yourself, then your MS will behave better too.