@wxrmthinthesun 

EditedLast reply

wxrmthinthesun

How do you live with your MS?

I'm just sharing some thoughts here and I'm curious about other people's opinions! So, we may all know that Christina Applegate did a red carpet in the past couple days with a cane that had "FUMS" all over it. Which I respect but it's not for me. The "MSWarrior/Fighter" and the " FUMS" mentality isn't helpful and spreads some misinformation in my opinion. We all know that we're living with a incurable, progressive disease - I try not to think too much on the future and just live in the now. Those mentalities I've mentioned, feel toxic to me and if I were to follow them would leave me in an angry "why me?" victim mentality. It isn't healthy or useful and it's so easy to fall into when you've have some hard stuff to go through. I have been in therapy a year now and we just passed my 1st diagnosis anniversary on the 19th and lets just say it was a little weird to think about the scared "why me?" person I was back when I received the clear and profound diagnosis. Through guidance by the Buddy Network here on Shift.ms, conversations with my fiancé and my therapist, I've come to have a very humble way of living, where I don't fight my bad days like some others do (or at least I try). Like right now, the past couple of days I've been busy giving my house a spring clean and dragged a cat tree up our stairs by myself whilst my fiancé was at work (definitely should've waited for him to come home lol) and today I'm fatigued big time!! But, I always tell myself that, that's okay, I overdid it a little and we rest as a result and slow living has really been a blessing in my eyes. I've even been given perspective through having MS and I have made many more positive choices in my life. I started working for myself, been in therapy for a year, left a toxic home and a toxic work place. My life is much more positive because of having a diagnosis like this rather than worse. Granted, I do struggle, a lot! My memory isn't great and you get all sorts of made up brain fog words, my hands shake and struggle, I can't be on my feet for too long, I get all sorts of migraines, travel sickness, etc. My hands aren't what they used to be and stairs are a bit of a nightmare! But overall, I've gained more of the important stuff than I've lost. I don't fight MS, I live with MS. What experience have you had with MS? Do you feel you're a fighter/warrior? Why do you feel that way? Yes, I've accepted it and lost, mobility, independence, freedom, brain function etc as a result and dealt with a lot of negative emotions towards MS, but what keeps you there? Do you see the fighter/warrior mentality as a sign of strength? Do you feel that you're stronger than this disease? ps. I understand everything affects us differently, mentally and physically, I just want to know your perspective and opinion! No opinion is wrong and I appreciate that it might be different from my view, I guess I'm just an optimist!
@Gennadij

Hello! I'm probably one of those lucky ones who can't complain about MS. I have been living with this for fifteen years, and if we divide the defects and gains, then in general the picture is something like this: from the bad, dizziness, weakness, convulsions and that's almost all, not counting some temporary troubles. But you can live with all this, especially considering that during this time I started doing my favorite thing, found windsurfing for myself, and with it another life, another dimension where you exist completely separately from the rest of everything. My wife and I finally started traveling and started traveling even at home for several kilometers and with great enthusiasm finding a new plant or just a different perspective on a familiar place, we photographed all this and were very happy. It constantly changes me, but in the direction where there is more harmony and understanding, I no longer need to run somewhere quickly, I go little by little, although I understand that it can change in a moment and it will never be good. P.S. I'm writing through a translator, I'm learning English, but I'm not ready yet

2
@Gavinbeur

I follow same mentality and my mantra is there is someone worse off than me. I work 3 12 hour nights shifts and the next 4 days leave me fatigued, broken and in pain but try to get kn with it. I know how much work wipes me out and that it's probably hoping to get worse with my RRMS but along as I can move ill work along as possible.

1