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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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@sritawk 

Last reply

sritawk

Hi, from Scotland

I was pointed towards shift.ms as a great community and resource for MS. I’ve been newly diagnosed, and will be on Ocrevus once I’ve had my vaccinations. I stay near-ish Edinburgh, but will at least be having my infusions at there. Bit of a rubbish hand we’ve been dealt, haven’t we? Some days I’m fine, I barely think about my MS, but other days I well up at work (thank goodness for working from home, and the mute/camera off options on Google Hangouts). I broke down often in the early days and even stopped looking at two storey houses because I was so scared my mobility would deteriorate soon. Then I did some reading and was able to calm down. Thankfully modern medicine has meant that things are a lot better now than they were 20 years ago. But the uncertainty is still so daunting. I’m still weighing up the arguments for and against telling my workplace. What did you do, and what was the decision making behind whether to tell or not tell your employer? Thanks folks 😊
Edinburgh, Scotland, United Kingdom
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@jamoranto
@jamoranto
 

Hello @sritawk In my opinion no need to share in a perfect world we could but it ain’t perfect at all. I made the mistake in letting my employer know about my MS and lasted a year there then let go. It did force me to start my own company. Best Jorge

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@Dx24012021
@Dx24012021
 

This is your private health information and you do not need to disclose anything. The only caveat is if your disease is active and you need an extended amount of time off or require workplace modifications when (and if) you resume work in the physical realm. Then you might need to discuss things with your employer. Other people might suggest otherwise but if your diagnosis is not interfering with your ability to do your job then I wouldn't rush to tell anyone. I have been newly diagnosed too and just had my first infusion of Ocrevus on the 5th. Hang in there! We're all here to support you so don't be a stranger :)

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