@sarahshift 

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sarahshift

Missing the boat...

Hey all... I've been asked to share this by a member. They got in touch with me after we sent the members newsletter out the other week and it featured our two films, Gallop and Belong. "I watched your two videos on MS relationships (Gallop and the one with Kanye West and they are inspirational. However, it seems I missed the boat with Gallop. Sad as it is in my case and having MS for 15 years I never thought I had to find that special person who would accept and be there for me. Sure in those years I had a few girlfriends but like Gallop I never accepted that I was that anyone would understand my illness and stick with me. Sadly in hindsight, they did accept me but but sadly I pushed them away because I truly believed they were not understanding what it would be to handle a person with MS. Now present and foresight, I know I screwed up. Because in the last two years I have gotten worse with gait and heat issue. The point I'm trying to make is I missed the boat. I have big issues with heat which in turn makes my gait worse. Again in my MS for most my years I was playing golf almost everyday usually walking the courses with my clubs on my back 36 holes for many years and cross training twice a week on the most difficult (and dangerous) runs imaginable. Here is what is sad now. I never thought it would get worse as it has. So when I say I "missed the boat", I truly did miss the boat. I seemed to have confounded myself to my home. And this is the saddest part, I rarely visit, of even know how to meet another girl since I seemed to have become a recluse. That saddens me know. I have unknowingly took my self out of a relationship with another because I rarely see anyone. So this is a warning to others with MS. Please don't be stubborn as I was, believe that when your other half tells you she or he can take the journey with you don't be stubborn as I was, because I missed the "boat". If a person has by their words accepted you please believe them. You don't have time are unlimited chances. Grab onto that person and hold tight. A quick history of me pre-MS; I was a very avid sand volleyball player,was in ski patrol, was a jet ski racer, a career Firefighter a race car driver and so much more. These fun stuff I eventually came to accept one by one that the fun and games were over. And everyone else needs to come to reality and wisely plan for the future of things to come. You may or I hope you do, post my letter to you as a warning to not miss the boat." I'm sure you'll all appreciate the members honesty and I'm happy to pass on any thoughts to the member via email as I don't think they use the site regularly so may not see them. Thanks Sarah
@Stumbler

That is so sad. The poor guy may have missed the boat, but there's more than one way to get over, or under a sea! MS can be isolating, if we allow it too. It is down to us to make the effort, as hard and as logistically challenging it may be. MS can make us "socially unacceptable", i.e. awkward to be with. And that's down to us too. We have to be masters of our own destiny. And, everyone's MS is different. I would hope that, with today's medical advances, a position of isolation will be the furthest option for most people.

@matt-p

Omg I can relate to what the letter says I'm 35 and although I can get around confidence to go out and chat and meet people has been hit so badly that I tend to stay in I know that this isn't the good thing to do but have never met someone of similar age to talk to about all the ms issues and what they do to your confidence deep down keep telling myself to use this site more but really do wish that a app could be created for it thanks for listening