@mser79

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mser79

The restarting of Ocrevus after coronavirus delay

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cause of anxiety as I am currently living with nerve pain and the obvious risk of more relapses. I am interested if anybody else at different hospitals is able to begin treatment on Ocrevus, Cladribine or Alemtuzumab, any sooner. I know NHNN is often more cautious at prescribing, and I know that this is currently the national guidance on prescribing these treatments , but I was keen for any other peoples' news about when we might be able to start treatment and I wanted a comparison from another hospital. Would be grateful of any experiences/news. Many thanks

Carla_L_Baldwin

@Carla_L_Baldwin

I was informed about Ocrevus this week by my nurse. Can only have appoints over the phone or virtual. Have you tried the drug? If so does it work for you?