@marks 

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marks

Exercise and Work after Lemtrada

I'm due to start my Lemtrada treatment at the end of the month. I was wondering if anyone who has had the treatment can give me any indication of how long they took off work and were able to return to exercise? I had a severe (and so far only...) relapse last year which required me to have 2 - 3 months of intensive Physio to learn to walk again. I've since managed to get back to my pre MS self. I'm running marathons/triathlons and I know I'll be keen to get back to running etc ASAP after the infusion as it makes me feel do good and helps combat fatigue etc. Any advice would be much appreciated.
@TracyD

In relation to the 'back to work' question - it really depends what you do and how you can work. I am a May 18th Lemmie I'm a telecoms project manager and have the ability to work from home, I took my laptop into Southampton Hospital and worked through my infusions - the Dr's actually approved of this saying if you have something to keep you busy the time passes more quickly and you don't just lie there feeling crappy or over analysing every bit of yourself. I worked from home last week and am back at work today in my little glass 'isolation suite' where nobody can sneeze or cough on me. As for the exercise - well I'm built more for comfort than speed, but I have all the same stamina etc that I've had before treatment. I did however have an intensive preparation for treatment before I went it - lots and lots of vitamins and minerals and immune system supplements (you want your body's remaining systems to pick up the slack once you squish those nasty attacking white blood cells) and Oxygen Therapy twice a week to super oxygenate my red blood cells to make them super healing and also helps greatly with fatigue and brain fog for me. Also that 3-4 litres of water a day .... start doing it now because you quickly discover you have a bladder the size of a peanut and your bathroom needs a revolving door - it takes 2-3 weeks to get used to that quantity of water and you don't want to be back and forwards to the loo dragging a drip pole with you for 4-5 hours during the infusion. Keep the water going before during and after so you flush out all the dead WBC's dehydration is the root of a lot of people's symptoms - dizziness / sickness / fatigue rather than the treatment itself Good luck, if you want to talk more add me and PM It's all documented here : http://tracyslemtradajourney.blogspot.co.uk/ Tracy xx

@marks

Hi Tracy. Thanks for the quick reply. I do a lot of guitar teaching in schools but won't have to go back to work for 8 weeks after the infusion as they're all on holiday. I'm guessing that should be long enough for my immune system to recover a bit?! How long have you been told to avoid people with coughs and colds?