MS sucks! I've been robbed!
Hello everyone. My name is Desare. In November 2015, I was diagnosed with PPMS. I am just a couple of months into this... and I'm not impressed. I used to be a very active person. I was a dog groomer and an active part of my family. Don't get me wrong, I used to love to lay around and be lazy on my Sundays, off work at home. This is ridiculous. My husband (of 21 years) and daughter (15 years) try to keep me involved as much as they can but, most of the time I just retreat to my bedroom where I am most comfortable. I don't want to be alone but, it's inevitable. Who wants to kick it in my room all day?
I didn't even realize I had anything like MS. Then my body started failing, so off to the doctor I went. My hands were tingling and my right leg was stiff causing walking problems. I was always dizzy. Doctors thought MS. No history of anything like that in my family. A second opinion was needed. And here I am. Crazy insane, that I have had MS for years and didn't even know. Could I have been that determined? To keep on going, literally, until my body physically gave up. So, here I am with Primarily Progressive MS. I've been on Copaxone for 5 weeks now and I don't notice ANYTHING!! But, it is for Relapsing and Remitting MS. From what I understand, it is just supposed to slow mine down. Not help my symptoms get better.
I am having a hard time accepting this terrible sentence. I am backed into a corner and have no control! I cant' clean my house, work be a proper wife and mother. It sucks! I didn't ask for this! Usually, I am a very positive person. This MS thing has just knocked the wind outta my sails. I know in my head...I need to be strong. For me, first of all. And my family. I figured hearing from some other people in the same situation might help? I hope so!
Welcome to our group of late diagnosed MSers , I am one of them my doctor put me off for 10 years even though I kept asking if I should be tested. Sounds like you might be having a long relapse, is the doctor your going to a neuro? You may want to talk to your MS nurse about trying a different DMT. You are fighting a war now, start researching and learning about what's going on now and the future. Diet (anti-inflammatory food) and exercise are important. Research over the counter drugs such as Biotin, Vit D3, B12, Tumeric , Alpha Lipoid Acid there are many more. I have only taken showers since I was diagnose, my neuro believe hot baths and heating pads can cause relapses or cause past damage to rear its ugly head. Gladly gave it up, I drink frozen pineapple juice every night I don't even like it but fresh or frozen pineapple juice is used to reduce inflammation in the body by athletes. You are still going through shock and depression from being diagnosed. Get your self a recliner or something and stay in the living room with your family. I still work in my clay studio and garden, I get slower every year but I keep trying. Potter
Hi, @madwoman32 . A diagnosis of MS is difficult to accept, as it makes the future very unclear. But, no-one's future is clear as no-one knows what tomorrow will bring them. We have been given the opportunity to re-evaluate our lives now, to see what is really important and of value to us. And, it's not now the latest iPhone! It takes time to accept that you have MS. And, it's only then that you can find a way to get on with your life. The journey to acceptance is a rocky ride of various emotional phases :- 1. Shock and Denial 2. Pain and Guilt 3. Anger and Bargaining 4. Depression, reflection, loneliness 5. The upward turn 6. Reconstruction and working through 7. Acceptance and hope And, it's not a direct ride from 1 to 7. Expect to double-back and revisit phases. But, knowing that you're on this journey helps you to understand where you're at presently. Don't hide yourself away. MS may be your condition, but it will be affecting your entire family unit, so work as a team. Your enemy now has a name, so find out about it, its strengths and weaknesses, for therein lies the way to manage your MS. And, it is all about management, finding a way for you and your MS to live in harmony together. :wink: